Trying to choose a power chair and ca... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Trying to choose a power chair and car, and getting bogged down.

Amanita profile image
6 Replies

First I must say I do not have access to Motability. I always worked from home and did not get into serious difficulties with my mobility until relatively recently, after I was 65 - so no DLA ; no Motability.

I need a machine that will enable me to go for "walks" when I have driven somewhere. I am fed up with not being able to go round gardens or galleries. I do not have the hand/arm strength to use a manual wheel chair.

I have to be completely self-sufficient. I live alone and have nobody to come and help me to get a wheelchair in and out of a vehicle. A dismantle-able scooter is not an option, as I don't have the strength to take it apart - or lift the components. I shall need a hoist to load the chair into the car.

My Occupational Therapist gave me the contact details of a charity (though I shall be self funding) which helps people find the right wheelchair. I waited nine months to be assessed. The Wheelchair Lady decided a power chair would be more suitable for me than a scooter, and after another six weeks we visited the "local" showroom 40 miles away. There was only one chair there (Kymco K-aktiv) that could cope with outdoor conditions where I could also fold down the back rest myself. Another, potentially suitable power chair ( Invacare Fox) wasn't in the showroom at the time.

After yet another six weeks I am awaiting a visit from the Wheelchair Lady with the two power chairs so I can try out how they perform in real life, and whether they'll cope with my gravel. I need accurate measurements of the folded down height (ground to armrests), as that will be critical for fitting into a vehicle. I have been given two different measurements for the Kymco, so must check for myself.

The Wheelchair Lady gave me the details of a car adaptation firm which no longer exists, so after looking up alternatives myself and talking to them, I have provisionally chosen the one which has actually bothered to come out to me and let me try out a real hoist. In advertisements getting your chair in and out is "easy" - it is always done by someone able-bodied.

The control pad for the hoist needed a degree of thumb strength I simply didn't have, and the clips were hard to use. I had to lean on the car for balance. I am now awaiting a second visit so I can try their alternative controls and "easier" clips.

Meanwhile I have been shown a "ride-in" Berlingo with a snazzy ramp which I couldn't climb up or down - even with both crutches - to fold it up and get round to the driver's seat. I think the wheelchair user is really supposed to be a passenger.

I have looked at a Vauxhall Zafira which might do, though the height of the opening at the back is critical. I currently have an Astra hatchback, so the controls would be familiar. The man who showed me the hoist said a Grand Picasso was better. I know nothing about cars, and need something reliable, and preferably not too huge. I do have visitors sometimes so would like to be able to take two passengers.

Will the power chair (from floor to arm-rests) obscure my view from the rear-view mirror? (Logicman - I have not come across anything with a lowered floor)

If I buy a new car and get it adapted before it's registered in my name, it will be VAT free. The Wheelchair Lady did not know this. I don't think she's ever met anyone who wasn't eligible for Motability.

But if I want a new one I will probably have to wait four or five months. I thought car showrooms were absolutely stuffed full of new cars , but apparently not fully-automatic ones with a finger-operated hand brake. I can't take a manual car for a test drive.

The thing that is making me so weary and frustrated is the fact that I am having to find out almost everything for myself. A friend said I should just ask someone who already has a power chair, but I don't know anyone - so I'm asking you !

I am in Scotland, well north of Edinburgh, and am not used to motorway driving, so please don't suggest visiting a wonderful showroom in Birmingham or anywhere else inaccessible to me.

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Amanita
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6 Replies
Patricia2015 profile image
Patricia2015

I'm sorry I have no experience with power chairs but I feel your struggle and want to wish you good luck with finding a good powerchair and appropriate car. Keep your strengths high!

Amanita profile image
Amanita in reply to Patricia2015

Thank you for your kind thoughts, Patricia - much appreciated.   Though it would be good if someone had some practical advice - or even finds themselves  in a similar situation. I can't be the only one....

Patricia2015 profile image
Patricia2015 in reply to Amanita

When I bought my (manual) chair I was also looking for information. I was advised by people on diverse fora and my ergotherapist.

Maybe you could put your question on a forum with people who have other disabilities but need power chairs. Thinking of fora (maybe on health unlocked) with people with MS or who are paralysed.

Wishing you good luck!

chicodex profile image
chicodex

have a look at the 'Zinger' - It is brilliant!

chicodex profile image
chicodex

zingerchair.co.uk

- no special car needed to transport - it folds up like a lawn chair, talk to Mark Green and mention my name, (Jamie) - from what I read it could be the perfect solution for you and will save you a lot of money, I bought one a couple of months ago and it has changed my whole outlook on life, getting out and about is now an absolute pleasure, no longer a task...

Amanita profile image
Amanita

Hi, Chicodex,

Thank you for reading my appeal, and for your practical reply.

I eagerly looked up Zinger, and thought how sensible that someone is actually using light lithium batteries for mobility devices at last. I saw the Zinger weighs only 18 kg, so did an experiment.

I just managed - with difficulty - to heave an old vacuum cleaner 2 inches off the floor and on to my bathroom scales. It weighs 10kg. Bother !

(Why are mobility machines always demonstrated by able-bodied people in the advertisements ?)

I am so glad you are able to use this device, and that it is making such a difference for you.

For me the quest continues.

I have dismissed the hoist solution, because of the need to have at least 3 hands if your balance is poor - plus the fact the (well-known) firm let me down badly 4 times: not turning up when agreed, and not bothering to contact me - or even apologise.

Patricia - I have spent a very great deal of time online, and looked in other fora - but not a scrap of luck. But I have recently been in contact with the lady in Edinburgh who conducted my medical driving assessment in 2012.

Now I am waiting to see a horrifically expensive VW Caddy conversion and a much less expensive "Joey" platform lift. Has anyone here any knowledge of those ?

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