Hi all, long shot but do any of my fellow CMT sufferers live on the island??
Isle of Man: Hi all, long shot but do... - Charcot-Marie-Too...
Isle of Man
Written by
Paulina
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4 Replies
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Nearest I can do for you is Christchurch...not far as the Pollard swims I suppose...but not on the island...mind you...I can see the island most days when we go for a walk...I'll give you a wave (that's almost a joke)
Hi Lisa
Sorry for the late response but ive just seen your reply.
I have type 1a, I was diagnosed around 8 years ago now, my daughter hasn't been tested but my 11 year old granddaughter has and also has type 1a, so I guess my daughter must have it as it cant skip a generation (i don't think)
As its a small island and we don't have any support groups, please let me know if you ever want to meet for a coffee and chat.
Thanks
Pauline