Isle of Man: Hi all, long shot but do... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Isle of Man

Paulina profile image
4 Replies

Hi all, long shot but do any of my fellow CMT sufferers live on the island?? :)

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Paulina profile image
Paulina
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4 Replies
Forester profile image
Forester

Nearest I can do for you is Christchurch...not far as the Pollard swims I suppose...but not on the island...mind you...I can see the island most days when we go for a walk...I'll give you a wave (that's almost a joke)

Paulina profile image
Paulina in reply to Forester

I will look out for you Forester lol

Forester profile image
Forester in reply to Paulina

Silly me...I neglected to notice that you meant Isle of Man...I thought you were from the Isle of Wight...so, I wonder if I can blame CMT for my natural stupidity? Do you think I might get away with it?

Paulina profile image
Paulina

Hi Lisa

Sorry for the late response but ive just seen your reply.

I have type 1a, I was diagnosed around 8 years ago now, my daughter hasn't been tested but my 11 year old granddaughter has and also has type 1a, so I guess my daughter must have it as it cant skip a generation (i don't think)

As its a small island and we don't have any support groups, please let me know if you ever want to meet for a coffee and chat.

Thanks

Pauline