CMT in young people

[SPJCurry]

Hi My Name is Sean Paul and im 29. My CMT results in having a bad tremor in my hands and i just wanted to know if anyone else out there has the same problem and if they have any tips for me Thanks i look forward to hearing from you

[Tandarts]

Hi Sean maybe your GP can prescribe a Beta-blocker for you. It definitely helped me.

[chicodex in reply to Tandarts]

I have been prescribed Gabapentin and Amytryptyine and have had quite severe allergic reactions to both - am now on dihydrocodeine only ... I only take it when pain is severe and it helps a bit

[Ysbryd]

Hi Sean,

I did have bad hand tremors when the muscles in my hands & forearms wasted in my early twenties. These physical aspects however were intermingled with great psychological/emotional distress (which worsens CMT hugely) so it's very much a chicken & egg situation.

A few years on although these muscles have of course remained wasted, I no longer have the tremors. I've never taken medication of any kind. All I can suggest in the short-medium term is to do as much light exercise in these limbs (and more generally) as possible and see if there's any difference after a while.

Here's wishing you all the best & take care.

[chicodex]

Yes I have similar symptoms that are exacerbated by walking tremors, cramps and pain... the cramps are truly awful - my neurology consultant (whom I see once a year for approx 15 minutes) prescribed quinine tabs and they seem to alleviate the cramps in my legs, arms and hands... worth a try

[Barry52]

I have bought more pens than I can remember,I was given beta Blocker but for me made no difference,I use Baclofen for cramps etc......