CMT type 5: I have been diagnosed with... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,680 members666 posts

CMT type 5

kitbo21 profile image
9 Replies

I have been diagnosed with type 5.. Anyone else??

Written by
kitbo21 profile image
kitbo21
To view profiles and participate in discussions please or .
9 Replies
bexlp profile image
bexlp

I also have type 5

Megan23 profile image
Megan23

Hi I'm Mandy from Hull yorkshire I just found out I have cmt a few weeks ago I know it's heredity off my mothers side up to now hope ur well and doing ok xx Mandy

kitbo21 profile image
kitbo21 in reply to Megan23

Hi Mandy, it's quite overwhelming trying to take it all in but there are so many support groups on Facebook with people like us, I find them very useful and informative xx

nikkiogi profile image
nikkiogi in reply to Megan23

Hi Megan. My name is NIKKI Ogilvie I also live in Hull and have CMT. I wondered if you would like to friend me on Facebook so we could swap stories ect. Looking forward to hearing from you. NIKKI xx

nikkiogi profile image
nikkiogi

Where is the follow button please?

beckyp profile image
beckyp

Hi, I also have type 5. I was told only a few people on the planet have type 5! That makes us almost unique. Lucky us...:) I m from the New Forest, where do you live?

kitbo21 profile image
kitbo21

Hi yes we are unique haha! I'm in Glasgow, Scotland xxx

Exhausted101 profile image
Exhausted101

I was given a diagnosis of CMT in the '80's which was confirmed in the '90's, but don't know what type. Tested negative for CMT1.

Glasgow's a bit chilly tonight lol

kitbo21 profile image
kitbo21

I'm having a CMT lunch on Monday in the counting house in city centre, your more than welcome to come.. They'll be about 8 of us there all with CMT also there's a CMT quilt touring the USA which we can sign, it's on its way to me now and hopefully will be here in time for Monday xx

It's at 12 for 12.30 xx

You may also like...

Speech Problems with Type 1A CMT

was associated with CMT. Does anyone else with Type 1A CMT have speech problems? I use a machine

CMT seems to be getting worse

I am 56 years old and was diagnosed with CMT when I was 10. I always have had some limitations like...

Am I a carrier of CMT

his forties was diagnosed about 8 years ago in South Africa . I think he said it was type 1 , he...

CMT in some caused by Fluroquinolones

later specialist concluded that I have a type of CMT although I do not have many of the classic...

Assistive devices for CMT