Hey... I have cmt type 1a, I was diagnosed when I was 7 years old. When I was a baby I couldn't walk properly, I walked on my toes. I went to James Cook hospital and got splints, I was in them until 10, 2 years after my operation to try and flatten my feet.
It's hard having cmt in society, I am always bullied because I can't run as fast as the other people... I can't walk fast.. I can't walk up the stairs and run around, the list goes on. But I am a person, with emotions and feelings and anyone who ever gets bullied for having cmt... Don't be embarrassed, don't cry, don't let them get too you, show your strength and courage. Anyone with cmt are strong and amazing for getting out of bed each morning, going through all this pain that no one with out it can imagine.
Believe it or not, I'm scared of telling the doctors my pain, scared of telling people I have cmt In case they laugh or judge. I'm scared that I don't know what's going to happen in the future, but I'm not the only one, we all go through this... Everyone has different lives all I can say is we have cmt in common.
At the end of the day, cmt is always going to be in out DNA, in our life....
Never let it control your life and hold you back.
The doctors have told me it will be best if I had a desk job, I say no!
My dream is too make a difference in this world, stop animal abuse.. They have no voice, I will be that voice.
Everyone has a dream... Go for it!
If you fail, that's fine.. As long as you've tried.
Cmt, I have one thing too say too you. One day science will win, they will find a way to stop you carrying the genes on...
Possibly CMT - continued
Living with CMT
% of CMT types?
CMT and Trigemial Neuralgia