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CLL Support

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Tick antibiotics query

Previous post on tick bite in France. After receiving antibiotics for a tick bite that I managed to remove within the hour the Dr has given me Amoxicillin 1g...

Previous post on tick bite in France. After receiving antibiotics for a tick bit...

Jetliz

•1 hour ago

2 Replies

daily email

I don’t seem to get the daily email like in the past , has there been a change ?

I don’t seem to get the daily email like in the past , has there been a change ?...

Jsk1950

•5 hours ago

1 Reply

aches and pains when I exercise.

In the last year I have noticed I hurt and get stabbing pains in my ankle and lower back and hip after any form of exercise. Makes it difficult to keep in...

In the last year I have noticed I hurt and get stabbing pains in my ankle and lo...

BlueIvyDog

•11 hours ago

8 Replies

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PET Scan

Can anyone translate what this means? From a recent PET Scan Interval development of significant metabolically active lesions in the left upper lobe extending...

Can anyone translate what this means? From a recent PET Scan Interval developme...

Pokerguy

•15 hours ago

4 Replies

mmr vaccine in grandson

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 and still on watch and wait. My dad is my little boys best pal. My little boy has...

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 an...

abby_87

•15 hours ago

2 Replies

It wont be long

Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed...

Hi All I have seen my Consultant today and she said it is time to start thinkin...

TheFlyer

•21 hours ago

13 Replies

shingles

I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed...

I havnt posted for ages mainly because I’m generally very fit and well and do va...

Coffeejenny

•1 day ago

11 Replies

CLL on the spine

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07. Diagnosed CLL only last week (April 2024)… but very low levels CLL under 15%...

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07...

BraddyB

•1 day ago

5 Replies

Joy in response to frustrating news

I had a bone marrow biopsy to see if I was at uMRD and could come off my second CLL treatment in 5 years. The tests were sent to the wrong location and after...

I had a bone marrow biopsy to see if I was at uMRD and could come off my second ...

skipro

•1 day ago

35 Replies

CLL Treatment

I was dx with CLLOver 5 years ago. I have been on ibrutinib since. Now 76 years old. I cross-country ski, golf, paddle board and generally feel pretty darn...

I was dx with CLLOver 5 years ago. I have been on ibrutinib since. Now 76 years ...

Flyfisher70

•1 day ago

6 Replies

Sezary Syndrome.

After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only...

After many months of fighting a complete body rash, I was visually diagnose wit...

Champlain

•2 days ago

3 Replies

Tick bite!!

Hope someone can advise. I'm in Northern France on holiday and had an evening walk long trousers on but felt my knee go really hot. Rolled my trousers up and...

Hope someone can advise. I'm in Northern France on holiday and had an evening wa...

Jetliz

•2 days ago

13 Replies

CLL - Leukemia Cutis

Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5...

Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off me...

misterbee

•2 days ago

7 Replies

Trial Drug

Hi , Have been on a trial drug evaluating NX-5948-301 since early Feb, this trial consists of several cycles at The Churchill hospital,Oxford UKThe trial is...

Hi , Have been on a trial drug evaluating NX-5948-301 since early Feb, this tria...

bigange2024

•2 days ago

3 Replies

Platelets dropped after obinituzumab and won't rise even after transfusion 🚨

Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in...

Dear all, First of all, thank you very much for all the help and care I have a...

BMFCDRW

•2 days ago

8 Replies

My dad has CLL with TP53 mutation

As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions...

As i am writing this im very frightened And i need someone with similar co...

Ornate2001

•3 days ago

12 Replies

Reply to issues with Spleen

Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment,...

Hi, I agree with most of these comments on here that the enlargement of your s...

Roseneath69

•3 days ago

1 Reply

Ivermectin may help with cancer treatments

Studies of various chronic myeloid leukemia cell lines show that ivermectin kills these lines by inducing mitochondrial dysfunction and the production of free...

Studies of various chronic myeloid leukemia cell lines show that ivermectin kill...

craterlake

•4 days ago

14 Replies

Hello

Hi All, Just a brief intro, my husband was diagnosed with CLL/SLL June 2023, age 66, huge shock to say the least. His lymphocyte count doubled very...

Hi All, Just a brief intro, my husband was diagnosed with CLL/SLL June 20...

Spinlover

•4 days ago

22 Replies

Taking steroids

Hi to the CLL community wishing everyone well, I am towards the end of my V and O treatment which has gone well thankfully except for some side effects one...

Hi to the CLL community wishing everyone well, I am towards the end of my V and...

puppy43

•4 days ago

12 Replies

Enlarged spleen CLL stage 0

My CLL was diagnosed 2020 at stage 0 and my bloods are all within normal ranges now. My spleen has become very enlarged over the last 6 months so my...

My CLL was diagnosed 2020 at stage 0 and my bloods are all within normal ranges ...

Redkatt

•4 days ago

40 Replies

Next Game Changer??

There are a lot of very knowledgable people on this site who follow trials closely. Will the next CLL drug that will be a “game changer” be a BTK inhibitor...

There are a lot of very knowledgable people on this site who follow trials close...

EastBayDad

•5 days ago

7 Replies

denosumab

Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause...

Any one had experience of denosumab after 1st line CLL treatment? My gp is sugg...

RosettaClapp

•5 days ago

7 Replies

New symptom bitter taste in mouth on watch and wait

I was diagnosed with Cll 2014. Now have high ALC count 55 but still on watch and wait. Recently I have developed a persistent bitter taste in my mouth…..very...

I was diagnosed with Cll 2014. Now have high ALC count 55 but still on watch an...

Terryjb

•5 days ago

5 Replies

Cll and IBS

I had an abdominal CT on Monday, ordered by my Gastroenterologist. CLL related results were as expected, spleen 20cm up from 17cm in 2018, lymph nodes...

I had an abdominal CT on Monday, ordered by my Gastroenterologist. CLL related ...

Cleggett

•5 days ago

3 Replies

V&R treatment ending and skin blemishes mostly on face.

Hello friends. On Monday I will be taking in the last RITUBIMAB infusion of the 7 months targeted therapy for CLL. I will be treatment-Free. I am both elated...

Hello friends. On Monday I will be taking in the last RITUBIMAB infusion of the ...

unairdefamille

•6 days ago

4 Replies

MRD doubling time

Has anyone seen data or have a feel for what is cosidered slow vrs fast time for MRD to double after fixed duration therapies? john

Has anyone seen data or have a feel for what is cosidered slow vrs fast time for...

johnliston

•6 days ago

7 Replies

Another update

My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week...

My husband and i have finally got answers we needed as last Thursday and Friday ...

Nikkij81

•6 days ago

12 Replies

Moose Tracks ( not the ice cream flavor)

Haven’t felt well due to a sinus infection but the antibiotics I’ve received I’m finally recovering after 4 weeks. So I was unusually grateful to get out on...

Haven’t felt well due to a sinus infection but the antibiotics I’ve received I’m...

skipro

•6 days ago

8 Replies

Dana-Farber Cancer Institute

Seven studies from researchers at the prestigious Dana-Farber Cancer Institute have been retracted over the last two months after a scientist blogger alleged...

Seven studies from researchers at the prestigious Dana-Farber Cancer Institute h...

ChristineAM

•6 days ago

4 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Tick antibiotics query

daily email

aches and pains when I exercise.

PET Scan

mmr vaccine in grandson

It wont be long

shingles

CLL on the spine

Joy in response to frustrating news

CLL Treatment

Sezary Syndrome.

Tick bite!!

CLL - Leukemia Cutis

Trial Drug

Platelets dropped after obinituzumab and won't rise even after transfusion 🚨

My dad has CLL with TP53 mutation

Reply to issues with Spleen

Ivermectin may help with cancer treatments

Hello

Taking steroids

Enlarged spleen CLL stage 0

Next Game Changer??

denosumab

New symptom bitter taste in mouth on watch and wait

Cll and IBS

V&R treatment ending and skin blemishes mostly on face.

MRD doubling time

Another update

Moose Tracks ( not the ice cream flavor)

Dana-Farber Cancer Institute

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