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CLL Support

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CLL RESEARCH

I was contacted by a research company wanting to interview people in treatment f...
Safel profile image

Acute kidney failure - creatinine is climbing

My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuz...

Privigen 45g/4weeks !!!

I was diagnosed in November 7th 2019 following a bone marrow biopsy. Was on W...
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Chronic Pain (Muscle and Joint Pain)

Recent Harvard Health Letter, Volume 49, Number 6, April 2024 (Harvard Medical ...

Update on Ven & Obin protocol

I’m all the way through the ramp up on Venetaclax - just started 400 mg and have...
SunnyCA profile image

Emails

I have realised I am not getting emails anymore and I havent unsubscribe!!Has th...
Westie11- profile image

Emergency use authorization of a new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222)

Hi, Great news for the immunocompromised community including us. Invivyd annou...
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CLL CURE Hero

Falling platelet counts after achieving Undetectable Minimal Residual Diseaese

Hello folks I completed a course of Venetoclax & Obinituzumab (Gazyva) last Mar...

New drug authorized to protect immune compromised from Covid-19

I guess this is brand new...called Pemgarda. https://www.statnews.com/2024/...
DinosaurDad profile image

Remission but suddenly extreme night sweats

I received the good news that I am in complete remission......no cancer cells in...
MalcT profile image

uMRD 6

I have been living for the one year point on V plus O to get the clonal sequenc...
skipro profile image

skiing with a fellow CLLer

grateful for the invite by a fellow CLLer on treat as well to ski

more ski pics

in honor of one of ours who is no longer able to ski

Skiing with a fellow CLL patient who is also treatment

I am posting this series of pictures for a fellow CLL patient who is not able t...
skipro profile image

Fatigue only when running.

My husband is in early 70's and has been in wait and watch stage for 8 years. ...

Fatigue.. bloods good. Is remission over and SLL back?

SLL 2016 - bloods good, bulky lymph nodesBR x6 rounds 2019 Remission 2024: blood...
Shedman profile image

mid-year covid vaccine

the CDC has recommended we immuno-suppressed get a second covid vaccine this yea...
ElMaga profile image

Background

I appreciate the interest in knowing more of my "back story" and my CLL "markers...

bone joint and muscle pain

I’ve been reading the posts in another series and wanted to break this out. I’...
skipro profile image

Temporary stoppage of Ibrutinib

I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started ...
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Majic trial arm "A"

For the Majic trail, arm "A", I would like to know if anyone has completed the f...
JDG45 profile image

Lefty

I earned a degree in Electrical Engineering from the University of California, B...

Cramp

My 84 year old husband has had CLL W/W now for a few years and apart from the co...
opal11uk profile image

Poikilocytosis

Does anyone know what if any implications Poikilocytosis has on CLL?
ZimmC profile image

Is it my time

Hi All In Jan I hap a knee op torn Tendon and still recovering. Had some Blood...
TheFlyer profile image

Anyone on Zanubrutinib experience back and leg pain?

I started Zanubrutinib at the end of July in 2023. For the last few months, I ha...

Richter’s Anxiety

Good morning. I have a friend in his 50s with aggressive unmutated IGHV. I am i...

first line treatment with bendamustin and rithoximab

I had 6 month first line treatment with bendamustin and rithoximab in 2022 sept...

Increased side effects after 6-9 months on Venetoclax

Hi all. I'm happy with the positive results of the Gazyva/Venetoclax treatment ...
DMary profile image

Is it Safe to take regular oranges and coffee while on Ibrutinib?

Greetings. Pls I will like to know if it is safe to take oranges ( not Seville) ...
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