Posts - CLL Support | HealthUnlocked

CLL Support

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nana1961

looks like I’m gonna be in a trial combo. Zanubrutinib and soronaclax. It’s about a year regimen. The other is Gazyva and ventoclax same time frames

looks like I’m gonna be in a trial combo. Zanubrutinib and soronaclax. It’s abou...

Nana1961

•7 hours ago

1 Reply

Can eye of newt and toe of frog help cure my cll?

Double, double toil and trouble; Fire burn and caldron bubble. Fillet of a fenny snake, In the caldron boil and bake; Eye of...

Double, double toil and trouble; Fire burn and caldron bubble. Fillet of a fen...

cajunjeff

•13 hours ago

15 Replies

Maybe we should start writing letters to politicians or otherwise putting pressure on the goons who are "scrutinizing the Chinese"

https://www.nytimes.com/2024/04/15/health/wuxi-us-drugs-congress.html this company apparently makes Imbruvica and is now being looked at ????

https://www.nytimes.com/2024/04/15/health/wuxi-us-drugs-congress.html this co...

GettinThruIt

•18 hours ago

9 Replies

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CLL Support is 20!

CLL Support is 20! The UK charity behind this forum was set up in 2004 by a small group of CLL patients, with the help and support of Prof Daniel...

CLL Support is 20! The UK charity behind this forum was set up in 2004 by a sma...

pkguk2

Partner•20 hours ago

3 Replies

Feed news from my news feed: fruits and vegetables with the most pesticide risk (USA)

Which ones are relatively clean and which ones you need to check the label. Why going organic may not avoid the problem, while careful sourcing or...

Which ones are relatively clean and which ones you need to check the label. Why...

bennevisplace

•23 hours ago

Be the first to reply

Leeds HMDS Outreach

Has anyone else been referred to this monitoring service post treatment? I’m between Consultant and this and feel a bit adrift! Thanks

Has anyone else been referred to this monitoring service post treatment? I’m be...

carolly

•1 day ago

4 Replies

New diagnosis of CLL stage 0

I was recently diagnosed with Stage 0 CLL. I had elevated WBC and Lymph counts for the last year and was sent to a Hematologist. He diagnosed me with CLL....

I was recently diagnosed with Stage 0 CLL. I had elevated WBC and Lymph counts f...

LadyfromFlorida

•1 day ago

5 Replies

Cll to Hodgkins lymphoma

My husband had Cll 11 years and started treatment in Oct, 2023 with Calquence. It was working, but not as effectively as desired. They then added Venclexta in...

My husband had Cll 11 years and started treatment in Oct, 2023 with Calquence. ...

Junebug20

•2 days ago

16 Replies

Great News on MSNBC

https://www.msn.com/en-my/health/other/joe-was-at-death-s-door-until-pill-beat-his-cancer-in-six-months/ar-AA1nn0Mz

https://www.msn.com/en-my/health/other/joe-was-at-death-s-door-until-pill-beat-h...

EastBayDad

•2 days ago

31 Replies

Encouraging phase 1 trial results for GLPG5201, a CAR T-cell therapy

Introducing the Phase I EUPLAGIA-1 study (EudraCT 2021-003815-25), which investigated GLPG5201, a CD19 CAR T-cell therapy, in relapsed/refractory (R/R)...

Introducing the Phase I EUPLAGIA-1 study (EudraCT 2021-003815-25), which investi...

bennevisplace

•3 days ago

4 Replies

CLL and MDS

My husband has had CLL FOR 11 Years. He was recently diagnosed with MDS Leukemia also. Have any of you taken Rebuzil shots to promote growth of red blood...

My husband has had CLL FOR 11 Years. He was recently diagnosed with MDS Leukemia...

Farrpottery

•3 days ago

3 Replies

retinal bleed and Covid vaccination

good morning to all of you amazing members. I’m debating on getting my ninth Covid booster. Last fall I had a retinal bleed that occurred during a three...

good morning to all of you amazing members. I’m debating on getting my ninth C...

skipro

•4 days ago

16 Replies

SKin papuals, spots

As many of you may know I have had issues for last 16 months with skin papuals, spots. Initially they suspected my COVID booster and dx as vasculitis. But now...

As many of you may know I have had issues for last 16 months with skin papuals, ...

cartwheels

•4 days ago

11 Replies

The Bone-Marrow-Transplant Revolution

https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/

https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismat...

EastBayDad

•4 days ago

5 Replies

CLL treatment

Hi, CLL watch and wait since 2020. My doctor(s) have recommended I start treatment. I’ve been given 2 options. First, Ventaclax and Gazyva. Treatment lasts...

Hi, CLL watch and wait since 2020. My doctor(s) have recommended I start trea...

Nana1961

•5 days ago

24 Replies

WBC Morphology Review

Hi CLL Friends, April 24, next Wed. is my next appt. at MSK. Started preparing my questions (and getting anxious), even though I was tested as uMRD6 in blood...

Hi CLL Friends, April 24, next Wed. is my next appt. at MSK. Started preparing...

SurfSurf

•5 days ago

1 Reply

colonoscopy and endoscopy concerns

I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but...

I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonosco...

Claybuster

•6 days ago

9 Replies

21Bedlam21

Just had a text message from my Dr not my haematologist. Just had a chest x ray done. You have blunting round the edges of your lung fields. Is this anything...

Just had a text message from my Dr not my haematologist. Just had a chest x ray ...

21Bedlam21

•6 days ago

17 Replies

Covid jabs

My son has CLL he has had loads of jabs last 2 he had a bad reaction to pfizer which is the 1 they use now so doctor advised that he did not had any more so...

My son has CLL he has had loads of jabs last 2 he had a bad reaction to pfizer w...

Nannyjojo2

•6 days ago

4 Replies

CLL questions

Are you living a normal life? Are you happy? Do you live in fear of what will be the next deadly disease?

Are you living a normal life? Are you happy? Do you live in fear of what will be...

Crablegs

•6 days ago

62 Replies

Not receiving your HealthUnlocked email notifications? Here's what to do!

Over the last few weeks, we've had more than the usual number posts from members who are missing out on their notification emails. Unfortunately, this problem...

Over the last few weeks, we've had more than the usual number posts from members...

AussieNeil

Administrator•6 days ago

1 Reply

Tick antibiotics query

Previous post on tick bite in France. After receiving antibiotics for a tick bite that I managed to remove within the hour the Dr has given me Amoxicillin 1g...

Previous post on tick bite in France. After receiving antibiotics for a tick bit...

Jetliz

•7 days ago

8 Replies

daily email

I don’t seem to get the daily email like in the past , has there been a change ?

I don’t seem to get the daily email like in the past , has there been a change ?...

Jsk1950

•7 days ago

1 Reply

aches and pains when I exercise.

In the last year I have noticed I hurt and get stabbing pains in my ankle and lower back and hip after any form of exercise. Makes it difficult to keep in...

In the last year I have noticed I hurt and get stabbing pains in my ankle and lo...

BlueIvyDog

•7 days ago

11 Replies

PET Scan

Can anyone translate what this means? From a recent PET Scan Interval development of significant metabolically active lesions in the left upper lobe extending...

Can anyone translate what this means? From a recent PET Scan Interval developme...

Pokerguy

•8 days ago

5 Replies

mmr vaccine in grandson

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 and still on watch and wait. My dad is my little boys best pal. My little boy has...

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 an...

abby_87

•8 days ago

3 Replies

It wont be long

Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed...

Hi All I have seen my Consultant today and she said it is time to start thinkin...

TheFlyer

•8 days ago

17 Replies

shingles

I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed...

I havnt posted for ages mainly because I’m generally very fit and well and do va...

Coffeejenny

•8 days ago

24 Replies

CLL on the spine

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07. Diagnosed CLL only last week (April 2024)… but very low levels CLL under 15%...

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07...

BraddyB

•8 days ago

5 Replies

Joy in response to frustrating news

I had a bone marrow biopsy to see if I was at uMRD and could come off my second CLL treatment in 5 years. The tests were sent to the wrong location and after...

I had a bone marrow biopsy to see if I was at uMRD and could come off my second ...

skipro

•8 days ago

42 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

nana1961

Can eye of newt and toe of frog help cure my cll?

Maybe we should start writing letters to politicians or otherwise putting pressure on the goons who are "scrutinizing the Chinese"

CLL Support is 20!

Feed news from my news feed: fruits and vegetables with the most pesticide risk (USA)

Leeds HMDS Outreach

New diagnosis of CLL stage 0

Cll to Hodgkins lymphoma

Great News on MSNBC

Encouraging phase 1 trial results for GLPG5201, a CAR T-cell therapy

CLL and MDS

retinal bleed and Covid vaccination

SKin papuals, spots

The Bone-Marrow-Transplant Revolution

CLL treatment

WBC Morphology Review

colonoscopy and endoscopy concerns

21Bedlam21

Covid jabs

CLL questions

Not receiving your HealthUnlocked email notifications? Here's what to do!

Tick antibiotics query

daily email

aches and pains when I exercise.

PET Scan

mmr vaccine in grandson

It wont be long

shingles

CLL on the spine

Joy in response to frustrating news

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