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CLL Support

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CLL treatment

Hi, CLL watch and wait since 2020. My doctor(s) have recommended I start treatment. I’ve been given 2 options. First, Ventaclax and Gazyva. Treatment lasts...

Hi, CLL watch and wait since 2020. My doctor(s) have recommended I start trea...

Nana1961

•22 hours ago

4 Replies

WBC Morphology Review

Hi CLL Friends, April 24, next Wed. is my next appt. at MSK. Started preparing my questions (and getting anxious), even though I was tested as uMRD6 in blood...

Hi CLL Friends, April 24, next Wed. is my next appt. at MSK. Started preparing...

SurfSurf

•1 day ago

1 Reply

colonoscopy and endoscopy concerns

I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but...

I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonosco...

Claybuster

•1 day ago

9 Replies

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21Bedlam21

Just had a text message from my Dr not my haematologist. Just had a chest x ray done. You have blunting round the edges of your lung fields. Is this anything...

Just had a text message from my Dr not my haematologist. Just had a chest x ray ...

21Bedlam21

•1 day ago

15 Replies

Covid jabs

My son has CLL he has had loads of jabs last 2 he had a bad reaction to pfizer which is the 1 they use now so doctor advised that he did not had any more so...

My son has CLL he has had loads of jabs last 2 he had a bad reaction to pfizer w...

Nannyjojo2

•2 days ago

4 Replies

CLL questions

Are you living a normal life? Are you happy? Do you live in fear of what will be the next deadly disease?

Are you living a normal life? Are you happy? Do you live in fear of what will be...

Crablegs

•2 days ago

59 Replies

Not receiving your HealthUnlocked email notifications? Here's what to do!

Over the last few weeks, we've had more than the usual number posts from members who are missing out on their notification emails. Unfortunately, this problem...

Over the last few weeks, we've had more than the usual number posts from members...

AussieNeil

Administrator•2 days ago

1 Reply

Curcumin phytosome vs. standard curcumin

I have been at the "watch and worry" stage of CLL since 2019 and have been taking curcumin twice a day because it has been found to be effective against CLL in...

I have been at the "watch and worry" stage of CLL since 2019 and have been takin...

HowardR

•2 days ago

16 Replies

Tick antibiotics query

Previous post on tick bite in France. After receiving antibiotics for a tick bite that I managed to remove within the hour the Dr has given me Amoxicillin 1g...

Previous post on tick bite in France. After receiving antibiotics for a tick bit...

Jetliz

•3 days ago

8 Replies

daily email

I don’t seem to get the daily email like in the past , has there been a change ?

I don’t seem to get the daily email like in the past , has there been a change ?...

Jsk1950

•3 days ago

1 Reply

aches and pains when I exercise.

In the last year I have noticed I hurt and get stabbing pains in my ankle and lower back and hip after any form of exercise. Makes it difficult to keep in...

In the last year I have noticed I hurt and get stabbing pains in my ankle and lo...

BlueIvyDog

•3 days ago

10 Replies

PET Scan

Can anyone translate what this means? From a recent PET Scan Interval development of significant metabolically active lesions in the left upper lobe extending...

Can anyone translate what this means? From a recent PET Scan Interval developme...

Pokerguy

•3 days ago

4 Replies

mmr vaccine in grandson

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 and still on watch and wait. My dad is my little boys best pal. My little boy has...

evening everyone. just seeking some advice. My dad has cll,diagnosed in 2018 an...

abby_87

•3 days ago

3 Replies

It wont be long

Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed...

Hi All I have seen my Consultant today and she said it is time to start thinkin...

TheFlyer

•3 days ago

17 Replies

shingles

I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed...

I havnt posted for ages mainly because I’m generally very fit and well and do va...

Coffeejenny

•4 days ago

23 Replies

CLL on the spine

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07. Diagnosed CLL only last week (April 2024)… but very low levels CLL under 15%...

UK based male with a lymphoma mass on T4-T-10 causing spinal compression at T-07...

BraddyB

•4 days ago

5 Replies

Joy in response to frustrating news

I had a bone marrow biopsy to see if I was at uMRD and could come off my second CLL treatment in 5 years. The tests were sent to the wrong location and after...

I had a bone marrow biopsy to see if I was at uMRD and could come off my second ...

skipro

•4 days ago

42 Replies

CLL Treatment

I was dx with CLLOver 5 years ago. I have been on ibrutinib since. Now 76 years old. I cross-country ski, golf, paddle board and generally feel pretty darn...

I was dx with CLLOver 5 years ago. I have been on ibrutinib since. Now 76 years ...

Flyfisher70

•4 days ago

6 Replies

Sezary Syndrome.

After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only...

After many months of fighting a complete body rash, I was visually diagnose wit...

Champlain

•4 days ago

3 Replies

Tick bite!!

Hope someone can advise. I'm in Northern France on holiday and had an evening walk long trousers on but felt my knee go really hot. Rolled my trousers up and...

Hope someone can advise. I'm in Northern France on holiday and had an evening wa...

Jetliz

•4 days ago

13 Replies

CLL - Leukemia Cutis

Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5...

Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off me...

misterbee

•4 days ago

7 Replies

Trial Drug

Hi , Have been on a trial drug evaluating NX-5948-301 since early Feb, this trial consists of several cycles at The Churchill hospital,Oxford UKThe trial is...

Hi , Have been on a trial drug evaluating NX-5948-301 since early Feb, this tria...

bigange2024

•4 days ago

3 Replies

Platelets dropped after obinituzumab and won't rise even after transfusion 🚨

Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in...

Dear all, First of all, thank you very much for all the help and care I have a...

BMFCDRW

•5 days ago

8 Replies

My dad has CLL with TP53 mutation

As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions...

As i am writing this im very frightened And i need someone with similar co...

Ornate2001

•6 days ago

12 Replies

Reply to issues with Spleen

Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment,...

Hi, I agree with most of these comments on here that the enlargement of your s...

Roseneath69

•6 days ago

1 Reply

Ivermectin may help with cancer treatments

Studies of various chronic myeloid leukemia cell lines show that ivermectin kills these lines by inducing mitochondrial dysfunction and the production of free...

Studies of various chronic myeloid leukemia cell lines show that ivermectin kill...

craterlake

•6 days ago

15 Replies

Hello

Hi All, Just a brief intro, my husband was diagnosed with CLL/SLL June 2023, age 66, huge shock to say the least. His lymphocyte count doubled very...

Hi All, Just a brief intro, my husband was diagnosed with CLL/SLL June 20...

Spinlover

•6 days ago

22 Replies

Taking steroids

Hi to the CLL community wishing everyone well, I am towards the end of my V and O treatment which has gone well thankfully except for some side effects one...

Hi to the CLL community wishing everyone well, I am towards the end of my V and...

puppy43

•6 days ago

12 Replies

Enlarged spleen CLL stage 0

My CLL was diagnosed 2020 at stage 0 and my bloods are all within normal ranges now. My spleen has become very enlarged over the last 6 months so my...

My CLL was diagnosed 2020 at stage 0 and my bloods are all within normal ranges ...

Redkatt

•7 days ago

40 Replies

Next Game Changer??

There are a lot of very knowledgable people on this site who follow trials closely. Will the next CLL drug that will be a “game changer” be a BTK inhibitor...

There are a lot of very knowledgable people on this site who follow trials close...

EastBayDad

•7 days ago

7 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

CLL treatment

WBC Morphology Review

colonoscopy and endoscopy concerns

21Bedlam21

Covid jabs

CLL questions

Not receiving your HealthUnlocked email notifications? Here's what to do!

Curcumin phytosome vs. standard curcumin

Tick antibiotics query

daily email

aches and pains when I exercise.

PET Scan

mmr vaccine in grandson

It wont be long

shingles

CLL on the spine

Joy in response to frustrating news

CLL Treatment

Sezary Syndrome.

Tick bite!!

CLL - Leukemia Cutis

Trial Drug

Platelets dropped after obinituzumab and won't rise even after transfusion 🚨

My dad has CLL with TP53 mutation

Reply to issues with Spleen

Ivermectin may help with cancer treatments

Hello

Taking steroids

Enlarged spleen CLL stage 0

Next Game Changer??

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