Good news: I had my Pet/Cat scan at last and the... - CLL Support

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Good news

JanEyre profile image
20 Replies

I had my Pet/Cat scan at last and the good news is I do not have Ritchers Transformation .

My night sweats have decreased although I am getting very hot at nights and also getting hot sweats during the day. As I am 75 it is not menopause.

My bloods are going up both white cells and leukocytes I have another blood test next week and my haematologist will ring me.

Hopefully I will stay on ww for now.

I hope you are all staying safe

Jan😘😘

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JanEyre profile image
JanEyre
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20 Replies
PlanetaryKim profile image
PlanetaryKim

Congratulations! You must be so relieved! Glad it was such good news for you.

JanEyre profile image
JanEyre in reply to PlanetaryKim

Thanks Kim very relieved

josephinef profile image
josephinef

Hi JanEyre,

What a relief.

Just great news for you.

Hopefully you’re keeping well.

Good luck with your blood test next week.

Take care and stay safe.

Kind regards from Josephine from Australia 🙏❤️😊

JanEyre profile image
JanEyre in reply to josephinef

Thank you Josephine, hope you are also keeping well. I am also in Australia

I think we are very lucky with our doctors and health workers.

Also of course everyone doing the right thing to beat the corona virus. We are indeed the lucky country.

Cheers Jan

🥰🥰

josephinef profile image
josephinef in reply to JanEyre

Thanks Jan.

You’re so right, we are definitely living in the lucky country.

We came out from Italy in 1957 for a better life. Mum and Dad used to say that they came to Australia for a better opportunity for their children. If Italy offered what Australia had we would still be there. They never regretted it, nor did us children.

You take care and stay safe.

Kind regards Josephine 🙏🤞❤️

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Great news! I'm sure you will sleep better now that you have your scannresults back.

JanEyre profile image
JanEyre in reply to MsLockYourPosts

Thank you MsLockYourPosts xx

Poodle2 profile image
Poodle2

What a relief! I know exactly what it feels like having gone through that a month ago. X

JanEyre profile image
JanEyre in reply to Poodle2

It is such a worry waiting for the scan.

I hope you also had a good outcome. xx

Poodle2 profile image
Poodle2 in reply to JanEyre

Thanks, Jan. I had an ultrasound biopsy done in the middle of the lockdown here in the UK. It is "just" my CLL. I was so relieved, it was terribly stressful and scary.

Jacksc06 profile image
Jacksc06

Great news. Vey pleased for you.

JanEyre profile image
JanEyre in reply to Jacksc06

Thanks Jacksc06 xx

Kokobean profile image
Kokobean

Great news! So happy for you!

JanEyre profile image
JanEyre in reply to Kokobean

Thank you Kokobeanxxxx

Newdawn profile image
NewdawnAdministrator

Phew and double phew! 😳

Great news and an immense relief I bet!

Newdawn

JanEyre profile image
JanEyre in reply to Newdawn

Thanks Newdawn it was a great relief.

Hope you are well.

Jan

GMa27 profile image
GMa27

Terrific! 🎉

Are u sure it's not menopause? I am 65 and been getting hot flashes since 42. My experts say some women suffer from them and never get rid of them. I am unfortunately one of those unlucky women. Acupuncture and homeopathy helps me.

I've only experienced one night sweat. It was awful.

Do you know the difference between hot flashes and nite sweats? 💕

JanEyre profile image
JanEyre in reply to GMa27

Hi GMa27

I have never experienced hot flashes before as I was on HRT for many years

Due to a medical condition.

I have had many night sweats where you need to change your bedding in the night. The hot flashes are different with no sweating and also have them during the day. I don’t think it is anything to do with cll and will see my doctor if they continue.

I hope yours improve and you keep well.

Jan😘😘

GMa27 profile image
GMa27 in reply to JanEyre

Glad u know the difference...some do not. Can be confusing.

My hematologist for 11 years always asked me if I had night sweats. I finally asked why when I had one. It is a symptom they used to help stage (Rai) and decide if ready for treatment. Since I only had one in my 11th year of W&W, I didn't really pay attention. So when I was ready for treatment, she staged me at 3. If I had night sweats, she would have said 4 and probably would of had treatment earlier.

I found that many CLLers over the years, had night sweats. I was lucky not to have them.

It will be interesting for you to find out if they aren't related to ur CLL since it is a common side effect of NHL/CLL.

💕

Fran57 profile image
Fran57

Great news JanEyre!

Fran 😉

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