I'm curious about the response the CLL community has had to the Covid-19 virus. Those under W&W, those under treatment with the different modalities. I recently had flu-like symptoms and the swab test was negative for the virus. I have been under therapy with Ibrutinib since Oct 1, 2019 with all of my numbers moving in the right direction. I wish all us well physically and mentally to endure these most unusual times.
CLL AND COVID-19: I'm curious about the response... - CLL Support
CLL AND COVID-19
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desti
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AussieNeilPartnerAdministrator
You'll find plenty on this subject in the related posts below or to the side of this post. Have you read our pinned post on this topic?
healthunlocked.com/cllsuppo...
My FAQ reply and Dr John Byrd's advice contain much of what you need to know. Specific to your situation, the longer you are on Ibrutinib, the better your immune system should become, but you need to appreciate that you are at greater risk of complications if you do ever become infected, even if you do reach the point when your CLL is undetectable and you can stop treatment, unfortunately. The time spent taking extra precautions is time well spent, which I'm sure you appreciate after going through the stress of being tested!
Neil
Interesting. For me as a CLL patient on w&w, the confusion is around whether I am classed as ‘vulnerable’ and should be shielding or not. I believe I should, but have had no letter from the Welsh Government. Who is the overall authority on this I wonder? Stay safe.
There was a thread I read here yesterday with some of our fellow CLLers relating they have had Covid-19. Although it sounds like they did not have easy times, they sound like they're on the road to recovery. I found this experience somehow comforting...
I'll try to paste the link below. The thread starts out discussing temperature spikes, then oxygen sensors, but after that there are 3 posts by members recovering from Covid:
