Imbruvica: Hello, it's me again, Rosa. I'm... - CLL Support

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Imbruvica

brooklyn7672 profile image
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Hello, it's me again, Rosa. I'm starting my 9th week on Imbruvica. Still get the blisters in my mouth about an hour after I take the pill. Sometimes none, but when they do, they are mostly small and goes away the next day or two by rinsing out my mouth.

However, I've had a strong pain in my bone and muscle under my right breast. So strong that it takes my breath way. I take Aleve and use a CBD rub which helps but the damn thing has been with me for at least 3 weeks. I'm going to see my Oncologist on the 30th. He know about it. Does anyone know anything else to try and relieve this pain. I've done a spa but I get a rash. I don't want to try a massage because I get bruises very easily.

One final note. I live in Bellflower CA and would like see if there is a system in place to actually speak to someone in person who is taking Imbruvica, like a support group.

Thank you again

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brooklyn7672
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lankisterguy profile image
lankisterguyVolunteer

Hi brooklyn,

I'm married to a Brooklyn girl! :-)

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You asked about support groups with people that take Ibrutinib / Imbruvica.

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There are 4 in the Los Angeles area,

the closest may be Orange County (17 miles away) :

cllsociety.org/venue/uci-me...

building-56/

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The others are: West LA (25 miles)

cllsociety.org/venue/la-fir...

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And City of Hope - Anaheim (23 miles)

cllsociety.org/venue/city-o...

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Len

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