buffalo77

[rangers54]

for the first tme in 11 years im now feeling worried I also have painin my legs since I started ibtunib my first consultant said u don't get pain with ibrutinib I see a different consultant every appointmet they tell u different things.

‘I’ve developed a rash on my m new here 1st timei hav cll 11 years 6 w w 3 chemo im now on ibrutinib 16 months ive now developed a rash on my forehead could it b the ibrutnibthats the cause‘

[Newdawn Administrator]

Rangers, I’ve combined the content of your other post with the failed image to avoid duplication.

Welcome and Ibrutinib is well known to cause pain caused arthralgia. It’s a well recognised and documented side effect as are skin problems. You perhaps need a different medical team if the medics you see are unaware of these things.

Newdawn

[rangers54 in reply to Newdawn]

new dawn thanx ever ybody will thingssome s youv got some sunburni think my

they say you have some sunburn

i say but the suns not come out here its on my neck too

ithink i will go to my gp about it

[haposwald]

I have random leg pain but don’t think it CLL related . The RASH what a pain! I bought Benadryl cream and within 48 hours was gone I think truly important to drink The H2O it hard but I try somewhere between 1 1/2 to 2 gallons a day ask you doc for sure but I’ve been drinking that much for about a week before I started imbrutinib! 420mg 1x daily I think keeping my body flushed of dead cll cells etc has helped me extensively good luck!

[Mosaicgigi]

I have been on a Ibrutinib for a little over a year. I have joint pain daily. It is a documented side effect of the drug. Not all users have pai and for many it goes away after a while. Good luck.

[rangers54]

rangera54 iwent 2 mgp withthe rash he game hydrocortisome cream my gp surgery dont have a clue about cll

[rangers54]

wen i went 2 my heamotologist 3 weeks ago he didnt even check my

glands etc my blood was borderline and got iron tablets for low iron im crackin up i think

[rangers54]

haposwald i cant even drink apint of water how does waterhelp please enlighten me

[AussieNeil Partner Administrator in reply to rangers54]

Drinking more water means that more passes through your kidneys, diluting any toxins from all the dying CLL cells and reducing the time your kidneys, bladder and connecting tubes are exposed.

[rangers54]

aussie neil no one has ever told me to take xtra water if it will help i will give it ago they just tell you to take aglass ot water wen ure taking your ibrtinib