CLL Rituximab - first Rituxan Hycela Shot wen... - CLL Support

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CLL Rituximab - first Rituxan Hycela Shot went well!

ChrisLovesLife profile image
10 Replies

Since I was the first woman to have the shot at OHSU yesterday that replaced my routine Rituxan infusion, I thought I would share. I had pre-treatment fear for the first time after watching the administration video, concerns about more severe reactions and after 50 IV's in the last 3 years somehow a 7 minute shot in the stomach really freaked me out due to the lack of patient experience for this new treatment and lack of information available, so I thought I would put this out there!

It was quite uneventful actually! The Rituxan is mixed with Hycela which is a viscous (gel) material that forces the shot to be administered at a slow speed of 7 minutes for CLL patients. This is important due to the Hycela being a material that eats a fat pocket to make room for the medication deposit, allowing it to disburse slowly until your next treatment. The nurse lays a pillow on your lap and leans on it because the administration is rigorous, pinched about an inch of lower belly fat, said ready, and I did not feel the stab. She held extremely steady and after a bit I started feeling a very light crunch/crackle feel inside near the syringe, nothing painful just strange. After about 5 minutes I noticed the slightest uncomfortable feeling from having a needle in so long but I watched the rest empty and she uneventfully pulled it out, no pain. A band aid and 15 minutes of observation later, sent on my way instead of a 6 hour infusion. I can't recommend it enough if your insurance covers it. I had to have a minimum of one infusion prior without reaction to qualify for the shot.

Today as informed, I have a large red ring starting to form around the shot zone, a very slight tenderness, quadriceps are weak and some fatigue. A good experience all together!! Blessings and infection free Spring to all of you!

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ChrisLovesLife
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10 Replies
Panz profile image
Panz

Thanks for sharing...that is how we are able to help each other. I am not at all familiar with this treatment.

🙏💕☘️😍

ChrisLovesLife profile image
ChrisLovesLife in reply to Panz

My pleasure!

cllady01 profile image
cllady01Former Volunteer

Good description and takes some of the "I don't wanna try that feeling" away.

ChrisLovesLife profile image
ChrisLovesLife in reply to cllady01

Glad to help! Thank you.

attarintiki profile image
attarintiki

Thanks for sharing this new technique and its very informative

Jm954 profile image
Jm954Administrator

Thanks for sharing and all the detail which is really helpful to members.

All the best

Jackie

ChrisLovesLife profile image
ChrisLovesLife in reply to Jm954

All my best to you as well Jackie!

klees profile image
klees

Thanks for sharing. I agree, having the details helps alleviate the fear of not knowing.

Happy Spring!

Kim

Justasheet1 profile image
Justasheet1

Chris,

Great description of events. I let my wife read it. She is a nurse and gives Rituxan infusions.

Jeff

ChrisLovesLife profile image
ChrisLovesLife in reply to Justasheet1

Thank you, she's going to have strong forearms!

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