I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after almost 1 year!!
My Doctor prefers to say MRD- undetectable instead of MRD Negative.
I am most likely on a placebo. Per the trial I am on either a placebo or imbruvica. I am Very very sure a placebo given the fact that my side effects went away. Imbruvica can has some side effects...:). My nails and finger tips have gotten so much better!!
Over all I feel good. I have done a couple nice ski trips this winter so far. I am some times tired but I use to be that way before CLL as well. My Cpap really helps my sleep as well.
I continue to eat Vegan with a lot of good vegetables , fruit and nuts. I drink a lot of high quality green tea and drink juiced tumeric and wheat grass . I want to eat foods to hopefully fight cancer cells- not encourage them... I try to get a lot of sleep and exercise as well. I recommend movie "Forks over Knive's on Netflix and the book the China Study and Whole if you want to know more. Also the book N of 1 by Glenn Sabin. Being Vegan is also very good for the planet!!
I feel very fortunate, lucky and bless that I got to the I plus V trial given my 17P deleted, Trisomy 12 complex karyotype Unmuated Cytogenetics.
So far so good... I hope it lasts!!!
Be well, Thanks,