I was diagnosed 7 years ago, at the age of 48, with Chronic Lymphocytic Leukaemia. Over the years I have become accustomed to the unfazed response of the haematologist at my regular blood check-ups: all stable, nothing to worry about.
At every occasion though I have been reporting on symptoms, from fatigue through abdominal and muscle pain to blurred vision and mucus build-up, which are affecting me and have contributed to a decreasing quality of life and loss of job. And yet none of these symptoms can be explained, in the opinion of my haematologist, by the CLL. Nor can my GP explain them, suspecting that therefore that they are related to the CLL. It's a draw, so to speak, with each side having exhausted their resources of patience and knowledge.
I am hence in limbo, feeling gradually worse but apparently not unwell enough for any kind of treatment to be administered. Unsurprisingly this has made me quite cynical about and untrusting of the medical profession and health system.
I wonder how many of you find yourselves in this kind of limbo?