Lumps on top of each hand which look like ganglion cysts

[elm1]

I’m newly diagnosed with cll stage zero ,no symotoms, watch and wait. I’ve noticed a bump on the top of each of my hands which resemble ganglion cysts. I didn’t give it much thought until I read a post about leukemia cutis. Now I’m getting nervous. Any thoughts. P.S. I’m nervous about everything!!

[Jm954 Administrator]

Hi elm1,

In medicine there is a saying that goes - "the commonest things are common". In other words, don't start investigating for the rare diagnosis until you've excluded the common things. Leukaemia cutis is a very rare complication and most often seen in T cell or acute leukaemias/lymphomas, so even rarer in CLL. Leukaemia cutis plaques are flatter than ganglions and often a different colour to the surrounding skin.

The best thing to do would be to go to your GP/PCP and ask them what they think and I bet they're ganglions.

Best wishes

Jackie

[elm1 in reply to Jm954]

Thank you so much Jackie. I think they’re nothing but I’ve been so paranoid about everything. I’m sure you all can relate being totally shocked to get a cll diagnosis from a routine blood test. Especially since you feel great. Now I think everything could be catastrophic. I appreciate this site and the comraderie

[Jm954 Administrator in reply to elm1]

I understand. You feel let down by your body and can't trust it any more so everything is very scary. That feeling does subside a lot but it's always there.

Take care

[elm1 in reply to Jm954]

Thanks again!!!