I had to stop Ibrutinib for 7 days prior to an operation to remove a cancer tumor from my bladder and another 7 days after the surgery.
Also, in 3 week time I am to start a once a week (for 6 weeks) infusion of BCG directly into my Bladder. BCG is a weakened form of Tuberculosis. This tricks the body into producing cancer fighting cells that would inhibit/stop the (quite likely without treatment) cancer tumor to reform in my bladder. I have another note to my doctor asking if he will want me to stop ibrutinib for those 6 weeks as well. As for the treatment side effects, they are supposedly worse than if my bladder doctor just hit the bladder with traditional chemo. The difference he said is that the BCG treatment is much more successful.
I feel confident I will survive the bladder cancer treatment...but I feel I am in a little bit of uncharted territory as far as CLL and ibrutinib is concerned. I have been on Ibrutinib for almost 2.5 years. I suffer no symptoms of CLL and haven't for quite a while, so maybe that will help me in the long run. Has anyone else stopped their CLL treatment for a significant amount of time and returned to their treatment afterwords or did they do something else?