Newbie: Howdy. Pretty cool site with a lot of... - CLL Support

CLL Support

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gesch83ag profile image
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Howdy. Pretty cool site with a lot of info, suggestions.

I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol

Anyway. Hope symptoms get better after these first couple of weeks. Randy

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gesch83ag
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lorna222 profile image
lorna222

Hi Randy,

Welcome! This is a great forum as you have said:) Many times I learn more here than I do in a visit with my Dr.

I am supposed to be Ibrutinib in a few weeks for the first time. Hoping for the best. Feel free to ask questions here, so many people with great help, support and info:)

Lorna

PlanetaryKim profile image
PlanetaryKim

Welcome to the forum Randy! I hope your side effects abate as your body adjusts.

cheers,

kim

kathymac52 profile image
kathymac52

Welcome, Randy.My husband started ibrutinib 6 months ago, and his achy joints come and go.....but they do go! Also, he was quite tired at first as well......however, his numbers are trending normal and he is feeling much better. Hang in there.....and this is a great site. Any questions, ask away!

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