Mouth sores

[Bjhayes14]

Imbruvica and mouth sores

[Cllcanada Top Poster CURE Hero]

Not uncommon.. do you know what they are? Canker, Thrush, Herpes etc...? In the U.S. patients report so e success with Magic Mouthwash.

[Bjhayes14 in reply to Cllcanada]

I’ve had the problem since I got the new Imbruvica “pill.” I just found out I can still get the capsule and just received my capsules three days ago. It seems to be better already. The only thing I can see is the change in the inactive ingredients in the pill. Anyway, I hope that’s it.

[annmcgowan in reply to Cllcanada]

Hi which mouthwash is successfull?

Ann

[W00dfin in reply to annmcgowan]

My oncologist prescribed “high tech” mouthwash which was mixed onsite by the pharmacy according to his specifications. It has both healing and numbing properties.

[annmcgowan in reply to W00dfin]

Thank you . I see my specialist on Tuesday and will ask him to concider this.

Ann

[Wroxham in reply to annmcgowan]

Ann

If you are suffering Difflam oral rinse is very good. Usually needs prescription.

Sue

netdoctor.co.uk/medicines/m...

annmcgowan

[annmcgowan in reply to Wroxham]

Thank you seeing specialist on Tuesday and have a list of recommendations to run by him. I will add Difflam.

Ann

[Hidden in reply to annmcgowan]

Hi Ann

I use Listerine in the purple bottle and it works fine for mouth ulcers and sores while on Ibrutinib.

Stuart

[annmcgowan in reply to Hidden]

Thank you I will speak to my specialist on Tuesday and give all recommendations a try.

Ann

[Mystic75]

My husband was having mouth sores on ibrutinib and was prescribed Acyclovir, which did the trick. Apparently my husband's mouth sores were due to herpes virus.

[annmcgowan in reply to Mystic75]

Thank you. I am going to ask my specialist about swabbing my mouth for bacteria or viruses and discuss mouth washes too.

Ann

[Mystic75 in reply to annmcgowan]

My husband was reluctant to add another medicine but was very glad he did it.

[annmcgowan in reply to Mystic75]

I know how he feels. You feel overwhelmed with what you are already taking but if it makes life more comfortable I will take it. Thank you once again.

Ann

[BeckyLUSA]

Funny thing about Ibrutinib, you don’t always get all the side effects in the beginning. They can come and go at any time. I got my first mouth sore about 9 months into Ibrutinib treatment. I had been on Acyclovir the whole time. Had a couple two weeks ago, but they only lasted a couple of days. My specialist prescribed the famous Magic Mouthwash and it worked within a couple of days. As stated above, it is compounded in your local pharmacy, must be kept refrigerated and should be discarded after 2 weeks. Good luck!

BeckyL USA

[annmcgowan]

Thank you I will ask my specialist on Tuesday.

Ann

[Hoffy]

Oregano oil worked for me and others. 1 drop on your tooth brush then rinse slightly before using since it is so strong,

After a week the issues went away when I was on Imbruvica,

Be well,

Hoffy