I know some of you are interested in my progress. NHS England are due to publish the results of thier review on Ibrutinib, but that's still not happened. The trial drug also is still not available.
In the meantime I was due in clinic today. However since Friday I have been running a temperature, unable to stay awake, sweats and headaches. Because of how I'll I felt I did not drive and arranged transport. As usual on arrival my bloods were taken and the phlobotamist noticed I was unwell. After taking blood he did my blood pressure which was exceptionally low 76 over 54. He took me straight through to the doctor. I was admitted immediately and am now now on a regime of IV antibiotics 3 times a day plus a barrage of tests. Hopefully it's just an infection. But it looks like I'm here till Friday may be a further 7 days if they find something.
Now whilst the CLL is not being treated it goes to show what hood hands I'm in.