Does anyone else have harinduss sweats all during the day? I've had night sweats before I had chemo in 2010 but these just come out of nowhere! I'm on watch and wait but get IVIG treatments once a month. These have been going on for years and I've told my Dr`s but they act like it's no big deal!!! Is this normal or am I just crazy?
Thanks in advance for your comments,
Deana
Yes! Everyone blames the menopause but it would appear that it has lasted for more than 10 years! I have had to change my hair style due to excessive "glowing" and I do not need to exfoliate as I am forever wiping my brow. Should really be called Sweaty Betty! 😂
I completely understand. I've gotten all my hair cut off. I've some what learned to deal with it, I just apologize a lot to people for my clothes being soaking wet and all my makeup being wiped off.
I love the name. 😂
I did too! Have the shortest hair possible. It is embarrassing to be sweating all the time even in the winter.
Hey Betty....(LOL) I am sweaty as well, my bangs get all stringy....and I attract mosquitos like crazy......I am the spouse of a man with CLL.....so lucky for him, I have this symptom....short hair for me as well........I have a sister named Bette, and we called her that and she would hit us!!!
My husband spends most of his time closing windows while I sneak behind him opening them again. He's a bit more understanding in the winter though as I am hotter than the central heating 😂
I would hit anyone who called me Sweaty Betty, just like your sister.I am the only one brave enough! 🙊🙊🙊
My husband complains about overhead fans.....also goes around shutting windows....I have a fan that is directed right at my face when I sleep....and I still feel hot some nights....(Maybe we are married to the same guy? LOL)
Since I too get those sweats I’d say normal?
Hi Deana
I suffered with those sweats prior to treatment and I found eliminating stress and change of diet helped.
Your not going mad, Cll causes your body temperature regulation to be out and as a knock on effect you can sweat excessively.
Just another common side effect of Cll that Drs are oblivious to.
Stuart
Yes I’ve found they are definitely oblivious to a lot of Cll symptoms.
Someone else posted about sweating profusely during the day in the last few weeks, but I can't find the post. There was another post a couple of months ago too. Feeling less alone? You have plenty of company...
People have posted about this for years, and doctors have dismissed it for years. Very frustrating! Many gas and electric companies in the US give a discount to immune compromised patients. Sad that they recognize that our body temperature regulation can be out of wack, but most doctors don't!
Hello, I have during the day also.
I've been easily triggered for face/head sweating since long before diagnosis. My father was too, so I think it's hereditary, but it does seem worse these days (all I have to do is step into the U-bahn and my temples start up - doesn't help that Germany doesn't use A/C for anything!)
I have hot flashes all the time. Very uncomfortable! Thinking I have a fever but I don’t. Then I get cold lol. The symptom I dislike the most right now is I get short of breath at times. I have to cough very thick white sputum deep cough. I was a smoker for years but quit after my DX of cll. I’ve had a lung scan no cancer in the lungs. Which made me very happy. I am about 30 lbs over weight. I should diet but I don’t. I take in a mixture of good food and bad food lol. Just trying to be happy. I live in the Midwest it gets very hot some days. Always messing with the temperature. I guess it’s part of the disease.
Hi Dawn
Have a look into the anti inflammatory diet as This could be a cause of your breathing issues if your blood works in order.
Inflammation can be a common side effect people don’t talk about much and one of the biggest instigators is poor diet.
Stuart
Thank you
I never used to sweat much - until after diagnosis. Then had night sweats but not nearly as bad as a lot of people have described. But now in the late afternoon I get hot - even if I'm just sitting watching TV. And if I do anything outside sweat just pours off of me. I usually just take off my glasses outside since the sweat will drip down on them to the point that I can't see with them. I come in just drenched.
Paula
I don't have sweats, but my tolerance to cold has greatly increased in recent years.
When I have told the Dr. that my thermostat is broke they just look at me and try to say it is menopause. There is a big difference from a hotflash that lasts just a minute and is from your chest up and being hot and sweating from the bottom of your feet to the top of your head for long periods of time. I also have times when I am cold and can not get warm.
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