New to this: My platelets have been lower for... - CLL Support

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Purpledog profile image
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My platelets have been lower for about 7 years. Last year 116 this year 97. Also lumps went up slightly from last year. I saw hematologist last year and he made no mention of platelets after blood tests just scanning my lymph system with due. I didnt like him as he was not very informative so I didnt do the scan. I am trying to decide what to do. Had anyone taken a natural approach?

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Purpledog
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Purpledog profile image
Purpledog

Not lumps lymph level

I say this a lot here...you need a new doctor. I was Dx 16 months ago, my blood numbers are not bad....my Hematologist insists I see her every 3 months. I was on 3 month blood tests as well but when my numbers spiked in one month last winter she put me on every month blood tests.

I am not a big fan of whitecoats in general....but when I find a whitecoat who listens and seems concerned about me, well I keep them.

A lot of people think they can't change doctors...that is BS. My first Hematologist appointment after hearing Leukemia lasted 5 minutes and I told my GP I refuse to see that She-Ogre again....he was like fine, find one you like...my third one I like and have kept. She is great.

Scott

Jm954 profile image
Jm954Administrator

Hi Purpledog,

Before you do anything you need a definite diagnosis. You should go to your haematologist or another Dr and find out if there is anything wrong.

If you’ve got CLL please come back and we’ll support you and answer questions but otherwise we can’t help.

Best wishes

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