My lymphocytes 3.79 abs count!

[JJRCVRCPBSO]

My lymphocytes have gone down to 3.79 abs count. Should I be happy? Sounds like I am doing something right. Is it time to get excited?

[KL2018]

On treatment?

[JJRCVRCPBSO in reply to KL2018]

No. Diagnosed almost three years ago. No treatment so far. Thanks!

[AussieNeil Administrator]

It's great that they have gone down, but how high have they been? What's more important is what's been happening with your haemoglobin and platelet counts, not to mention spleen and node size changes If they are stable or have improved, then it is definitely time to get excited!

[JJRCVRCPBSO in reply to AussieNeil]

My lypho have been as high as 5.61 to 6.78. My platelets between 145 and 152. My hemo between 14.5 and 15.2. Sometimes I wonder if the lypho can be hiding somewhere and I should be concerned. Thank you for taking the time!

[AussieNeil Administrator in reply to JJRCVRCPBSO]

I'd say that you are seeing natural variation for someone with stable, early stage CLL. Blood tests show variation over time and even when retested in the same machine: healthunlocked.com/cllsuppo...

Wishing you a long, long time with stable disease.

Neil

[JJRCVRCPBSO in reply to AussieNeil]

Darn.

[Newdawn Administrator]

Have you ever had a definitive diagnosis of CLL JJ because I see this is your first post?

Newdawn

[JJRCVRCPBSO in reply to Newdawn]

A hematologist did. Should I go to a cell specialist?

[Newdawn Administrator in reply to JJRCVRCPBSO]

Was this from a flow cytometry test JJ?

What does the haematologist think about your present ALC?

Newdawn

[JJRCVRCPBSO in reply to Newdawn]

A. I have no idea.

B. Nothing.

[KL2018]

Aren’t those numbers normal? Does anyone else know? I’d be doing a happy dance.

[JJRCVRCPBSO in reply to KL2018]

That is what I thought. My doctor did not call me or anything.

[KL2018 in reply to JJRCVRCPBSO]

I’d be surprised if you have CLL!

[JJRCVRCPBSO in reply to KL2018]

I will keep my hopes in check but that would be something.

[AussieNeil Administrator in reply to KL2018]

The reference lymphocyte range is between 0.85 and 4.1 or thereabouts (depends on the lab) and by defenition, 95% of the healthy population has counts within that range. JJRCVRCPBSO, if you were diagnosed via a flow cytometry test, you could have high count MBL (Monoclonal B-Lymphocytosis): healthunlocked.com/cllsuppo... bordering on becoming CLL or perhaps SLL (Small Lymphocytic Lymphoma), where the CLL cells preferentially stay in lymph nodes and are either not present or are only present in small amounts in the blood: healthunlocked.com/cllsuppo...

For your own peace of mind, I expect you'll want to follow up with your specialist to find out more about how you were diagnosed and whether you had any indication of having enlarged nodes or spleen at diagnosis. The good news is that your lymphocyte count is stable and if you are able to confirm that you have little to no nodal involvement and that is also stable, then indeed it would be quite appropriate to be excited and have that happy dance!

Neil

[JJRCVRCPBSO in reply to AussieNeil]

Thank you so much Neil! Great information! I really appreciate you taking the time to go in so much detail. I wish you well!