So Very Blessed

[BlueGillfisherman]

Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam.

My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good.

He had told me six months ago that we might be looking at treatment in late 2018 or early 2019. He now has revised that to maybe 2020 but not before.

Diagnosed in 2015 and most likely had in 2014 as blood work in 2013 was good.

am deleted 13Q and mutated .

My only complaint is severe fatigue which like most CLL specialist my doc does not think it is CLL related. He did put me on B-12 injections to see if that would help. Will let you all know if a month or so how that is working.

So here I am still on Wait and Worry, but life could be a lot worse.

You all (as some of us this side of the pond say ) have a wonderful day.And to those of you who are hurting our thoughts and prayers are with you.

James

[annmcgowan]

Great news. Well done.

Ann

[Newdawn Administrator]

Great results James! I’m only puzzled as to why the treatment discussion started in the first place with such good overall results and favourable prognostic factors.

Best wishes,

Newdawn

[BlueGillfisherman in reply to Newdawn]

Hello NewDawn , I had asked my doc when he thought I might have to start treatment.He may have just been staying on the safe side

[UK-Sparky]

Long may the good news continue for you James

UK Sparky

[NoMoRLS]

Hang in there. I just dont get it about fatigue and CLL. There is plenty of info out there with link ti our exhaustion. I'm sorry friend. Went through same thing. Then i changed Drs. And to a more knowledgeable team.They still aren't perfect but much better Best to you.

[Mystic75]

Congratulations, James!

I'm including a post Chris (Cllcanada) provided about tracking the ALC. It provides a detailed explanation, which you might find useful.

healthunlocked.com/cllsuppo...

Hope you are able to resolve the fatigue issues soon so you feel better.

All the best,

D.

[Elizabetha]

Fabulous news! So pleased for you. 🎉

[sandybeaches]

Glad that things are stable for you but can empathize about the fatigue. Have you had your Vitamin D levels checked - low levels may cause fatigue. Also, have a full thyroid level screening done, not just the TSH level, if you haven't already.

Do try to keep as active as possible, even though you get tired out - any exercise is better than none.

Sandy Beaches

[BlueGillfisherman]

Thanks to all who replied , i will go over each suggestion in detail m have A great day