Survey of Monoclonal B-cell lymphocytosis Pati... - CLL Support

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Survey of Monoclonal B-cell lymphocytosis Patients by Queen's University in Belfast.

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Jm954Administrator
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NOTE: This survey is not for confirmed CLL patients in watch and wait but for patients with the pre-CLL condition called monoclonal B cell lymphocytosis.

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Researchers at Queen’s University Belfast in the UK, are conducting the first large-scale survey of Monoclonal B-cell lymphocytosis patients to investigate the impact of being diagnosed and living with a potentially precancerous condition.

They are particularly interested to know more about how you feel about your Monoclonal B-cell lymphocytosis and the impact, if any, that this has had on your life since diagnosis.

The findings of this study will be used to inform future healthcare service provision for individuals with precancers and will be published in a scientific peer reviewed journal.

To learn more about this study and to take part please click here: go.qub.ac.uk/QUBPIP2

All responses to the survey are anonymous (i.e. it will not be possible to identify you from any of the responses provided) and it should take no longer than 15-20 minutes to complete.

There is also a Facebook page @ facebook.com/QUBPIPStudy/

They look forward to hearing your opinions and appreciate your time and participation. Thank you for helping to further research.

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4 Replies

I might take the survey anyway and just pretend I have MBL instead of CLL

Scott

They won't know

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Jm954Administrator in reply to

Naughty boy! ;)

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MsLockYourPostsPassed Volunteer

Scott - Work on getting someone to do a similar study that fits those of us in other categories! Behave yourself! Oops, forgot, I'm talking to Scott. Forget the behave part!

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Jm954Administrator

janet803 Would you complete this and help with some research?

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