Feeling nasty after my third and final day of lymphs-depleting chemo (FC) before my CAR-T cells on March 22

[bkoffman]

Hi,

I wrote most of my last blog post cllsociety.org/car-t-blog/ on why I chose to come to Seattle for my CAR-T therapy before today which was good cuz I am no shape to write much today.

Stay strong.

We are all in this together.

Brian

cllsociety.org

bkoffman.blogspot.com

[Lola69]

Bonjour!!! You got this!!! You are tough!!!

[bkoffman CLL CURE Hero in reply to Lola69]

Merci bien.

[Lola69 in reply to bkoffman]

De rien Doctor!! chapeau!!!

[Yvbb]

“While most people

Converse it all away

I

Write it down”

Charles Bukowski

Thank you for sharing your experiences and thoughts, sir.

It means a lot to patients like me. I do hope you get the best of care. Be strong. Thinking of you!

Yvonne

[JR1964]

Brian, there is a rainbow at the end of this stormy weather. Thoughts and Prayers-STAY STRONG J.R.

[maggiesgrandmom]

Be strong Dr. Koffman, we are in this with you.

[Bar68]

Thoughts and prayers are with you.

[Justasheet1]

Hang in there Doc. 💪

Hopefully a great long remission is just on the other side.

Jeff

[CLLCalifornia-USA]

Strength to you and your family. Hang in there. Sally

[Mystic75]

"I Want to Tell You" that although you must have said many times "I'm So Tired", please know that "It Won't Be Long" before you'll be saying "Here Comes the Sun" and "I Feel Fine". Many times someone has said to you "You Can't Do That" and you always responded in your gentlemanly fashion "I Will".

You wasted no time on "The Long Winding Road" of your CLL journey , proactively pleading for patients, doctors and the medical community to "Come Together". And "Here, There and Everywhere" people responded.

Dr. Koffman, thank you for the update, even though you don't feel well. We are with you every step of the way! Hope you are feeling better soon!

[Name-1 in reply to Mystic75]

I am with you,Brian!

My prayers for you!

Best wishes!

Thank You!

[bkoffman CLL CURE Hero in reply to Mystic75]

How can I say thanks to such a beautiful note of encouragement. Can I please share it on Facebook? I am so lucky to have so many friends near and far. Stay strong. We are all in this together. Brian

[Mystic75 in reply to bkoffman]

Of course!!! Thank you!!

[pkpayne]

Stay true to what I think of as your slogan 'Stay strong - we are in this together!' You can do this!

Paula

[EugeneL2]

Very sorry to hear what you are going through. You can make it. Success is just around the corner.

[MsLockYourPosts Passed Volunteer]

Can't express my feelings better than Mystic did. I know he speaks for hundreds, if not thousands of us in the CLL world. From being part of a small, local support group, which was very important to me in my journey, even though I only attended meetings a couple of times, you have pushed on to make sure that all of us have reliable resources and support. There aren't enough words to properly thank you (and Chris Dwyer) for getting me past my initial diagnosis and treatment!

[thompsonellen]

I've been offline and have missed the posts about your CAR-T journey, but have caught up. As a young 17p deleted patient who travels to be under the care of Dr. Byrd (post obin/ venetoclax/ibrutinib trial and still on ibrutinib), I feel like I am on a similar journey. You have been an inspiration to be a smarter, better informed patient which got me on that path. You have a great attitude, and you are strong, so I have every confidence you will pull through. Best wishes to you and your wife. Ellen

[seoul]

Keeping in mind that you are fighting to win your battle against CLL and T-Cells in particular I would suggest you, rather than explaining all tiny details concentrate on health and recovery, which is much more important for you and your family.

I guess you need all your power to withstand the ups and downs ahead. In between I would suggest you to try clearing the mind and thinking on different items than CLL can help restoring the needed self heeling power of your body.

Meanwhile all the best to you, keep my fingers crossed and perhaps after treatment you let us know the CAR T cell story.

Best regards

Seoul

[bkoffman CLL CURE Hero in reply to seoul]

Thanks. Good advice. I will likely post less if I am feeling poorly.

[seoul in reply to bkoffman]

It is only to keep you through a difficult journey, During my first time when I got FCR I tried to do to much work in between and stopped it to a minimum before cycle 2. Concentrated fully on my body and it paid out eventually.

We all are keen to get results from new treatments like CAR T-cell injection but, more important is, that you making the most of it and hopefully explain enjoyable results later.

Wishing you and your wife enough power and luck to succeed.

[wmay13241]

Hang in there Dr. Koffman. There is an excellent chance you will achieve a long term complete remission.

[Dpop]

You got this!

[Ladydi49]

I read the blog yesterday and understand why you are most likely wiped out today. Keeping you in my thoughts and prayers. Sending warmth, healing and we'll wishes from sunny west central Florida.

Best Regards,

Dianne

[eggemma]

Dear Dr Kofmann, I wish you all the best. stay strong. kind regards Emma Fleetwood