Dizzy / brain freeze: Been on ibrutinib for 1... - CLL Support

CLL Support

22,502 members38,650 posts

Dizzy / brain freeze

cartwheels profile image
7 Replies

Been on ibrutinib for 11 months and already in remission but from time to time i get like a brain freeze sort of dizzy spells few seconds only . Now i know it could be 101 different things but wondered if anyone else ether on ibrutinib or with cll gets these

Written by
cartwheels profile image
cartwheels
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Jph02006 profile image
Jph02006

Hi Cartwheels

I know what you mean. Ibrutinib can trigger heart arrythmia (eg afib) which can make you feel dizzy or lightheaded. You may want to check with a cardiologist.

BTW, you might get more detailed responses if you lock or limit your post to the community

PlanetaryKim profile image
PlanetaryKim

I recently developed a problem similar to this on Ibrutinib. Kept getting light-headed dizzy spells while I was sitting in chair doing nothing - on computer or watching TV. Had been on Ibrutinib 5+ months. Then I was taken off IBR 9 days ago for surgery... and light-headed problem has not recurred. I mentioned it to my CLL specialist when I last saw him.

kim

cartwheels profile image
cartwheels in reply to PlanetaryKim

That is the same as me I seem to get it when I'm on the computer or smartphone etc

W00dfin profile image
W00dfin

I think I have had that happen maybe twice since starting Ibrutinib but just ignored it. Will pay more attention. I have been on Ibrutinib for 9 months.

cllady01 profile image
cllady01Former Volunteer

This site, Oncolink, suggests you call your Dr. if you have dizziness and it is under the Heart Problems side heading.

oncolink.org/cancer-treatme...

richutchens profile image
richutchens

Congratulations. Remission after 11 months is awesome. I’m 18 months and have a occasional dizziness but nothing severel.

Hoffy profile image
Hoffy

I have some brain freeze a bit but I think I have had it for while before Imbruvica.

Be well,

Hoffy

You may also like...

Dizziness

put it down to the hot weather but was wondering if any one else has these feelings.

dizziness

weird reaction a month ago tho knit was result of a bourbon drink. Very dizzy. Could not walk right...

Ibrutinib and antibiotics

If I get an infection and need to take antibiotics, must I first go off Ibrutinib? Are there any...

Dizziness on Ibrutinib

diagnosed CLL (tp53,del 17p, unmutated), on August started treatment with Ibrutinib,  2 months...

Dizziness when getting up too fast or bending over.

have been getting pretty dizzy and lightheaded almost like I’m about to pass out when I either get...