Whilst being overwhelmed yet again with fatigue, I started to reread any information about dealing with fatigue. It seems to me that the gps and consultant seem to have no real idea of how the patients feel or how to cope with these bad days. I was particularly incensed by the dismissive tone that a senior haematology nurse used when writing an article on 'How to Combat Fatigue.' It was all theory and no real understanding. The best suggestion she could come up with was to take a walk!
Any way I found a brief note on a communication from the uk CLLSA which mentions CLL fatigue and the effect of cytokines 1L-6 and 1L-10. Can anyone tell me more about these chemicals and can they be reduced or are there side effects when they are altered? They are not mentioned in 'Essential Haemotology' (Hoffbrand and Pettitt) but as my edition is 1995, perhaps no-one had discovered them then.
Any information would be highly welcome, Thanks