CLL question

[farber]

Hello, I were diagnosed with CLL 5 years ago, 2 years ago had chemoterapy and now I’m taking Imbruvica already 1 month. My lyphnotes almost gone. Is anybody’ know can we drink alchohol during with Imbruvica treatment ?

[Cllcanada Top Poster CURE Hero]

This should be discussed with your doctor...he knows your situation and possible comorbidities...

Alcohol is not contra indicated on ibrutinib...

~chris

[farber in reply to Cllcanada]

Thank you Natalie

[Ellieoak]

Talk to your Doctor. I have about 1 drink a month. My Doctor thinks that is fine, I’m sure it is because I don’t abuse it. I’ve been on Imbruvica for 5yrs now.

[gp7591 in reply to Ellieoak]

Ellieoak, Thanks very much for your note. You mentioned you've been on Ibrutinib (Imbruvica) for five years. How is it working for you? Any major side effects? Also- whatever you feel comfortable sharing- are you mutated or unmutated? Any notable "markers" or deletions? I'm curious because I'm new to all this- diagnosed in May 2017 and recently went on Ibrutinib. Whatever you can share will be much appreciated! -G

[Ellieoak in reply to gp7591]

I’m 11q & 13q deleted. I now have curly hair , before it was straight. I also have different joint problems which I take Plaquenil for. Recently I started taking drops of Everday Plus and it seems to relieve a lot of the joint pain so I have been able to exercise more. It is a hemp oil. My nails were getting real dry but I started creaming them everday so they have been fine. Let me know if there is something I missed I will be happy to help. Anna.

[lankisterguy Volunteer]

Here is a posting from 2 years ago on this exact subject. Many of the replies, especially the ones from Newdawn and PaulaS are excellent.

healthunlocked.com/cllsuppo...

BTW- if your post title had included the word alcohol, then the "Related Posts" at the top right of this page would have included those discussion threads.

Len

[lankisterguy Volunteer]

AussieNeil posted a broader question about alcohol and cancer in general. You may find that useful.

healthunlocked.com/cllsuppo...

Len

[farber in reply to lankisterguy]

Hello, I’m taking about alcoholic like drink sometimes wine occasionally. Thank you Natalie

[RJR1]

Hello, 18 months on Imbruvica. Nodes returned to normal size almost immediately. Blood has been like that ofva healthy person for almost a year.

I told my Dr. " no way was I giving up a beer or a cocktail " because of CLL or Imbruvica.

I'll have a beer with lunch maybe once or twice a week. When we are in MX, maybe several during the day ( avoid the water there ). I also allow my self an ounce or so of bourbon during cocktail hour most days. I do drink them light with water and problem drink near a quart of water during cocktail hour.

Rarely drink my bourbon neat...or heavy cocktails like my favorite Manhattan.

Moderation is the key

[farber]

Is anyone noticed to increase appetite and gain weigh during treatment on Imbruvica ?

[pkpayne in reply to farber]

When I started taking IB in late September I noticed that I gained about 10 pounds and I wasn't eating any more than I did before. I haven't noticed an increase in appetite however - just the weight gain.

[farber]

thank you for your response