Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story.
Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 )
WW until August 2011
FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came back very aggressive. He then only received 3 cycles of Bendamustine and Rutuxon stopped due to platelets hovering around 10k. Platelet transfusion didn’t help. Then he started Ibrutinib for 3 months no response. Then on Idelasilib for little over a year then it felt like over night he got sicker and his numbers got worse....So he’s now on Venetoclax he starts his 200mg dose this week. He’s had 2 platelet and 2 blood transfusions since starting the first 20mg. He tires really fast and no nausea until this week. ( not looking forward to the next ramp up)His platelets are holding at 16k. I see another transfusion in the near future. If venetoclax fails then a 350 mile drive for clinical trials.
Oh my~sorry for being so winded. I’m trying to take care of my self and thought hearing others would bring me peace and hope.
Thank you in advance for your kindness.