Migratory joint pain. : I have had fe and... - CLL Support

CLL Support

22,367 members • 38,474 posts

Migratory joint pain.

usapajgy profile image
usapajgy
•3 Replies

I have had fe and scattered episodes of migratory joking ain and sw long. Right now it is the lateral aspect of my right wrist, on the iulnar sidev 😢

I was wondering if anyone else is having this. Last time I had it is was on the top or dorsal aspect of the same hand. It is very painful and refractory to treatment. Any suggestions?

BTW, I never formally introduced myself to the community 😟 My name is Jackie York and I am 64 years old. I was on W&W for about 7 years but had to start treatment last year due to several infections, including double pneumonia after a long flight. I now wear a mask when I travel. I have only been on Imbruvica other than IVIG, doing great other than the migratory joint pain. Suggestions?

Written by
usapajgy profile image
usapajgy
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
duffymcgrif profile image
duffymcgrif

Hi - I'm female, age 71. Been on this oral med 4 months. Went from 196k white cell count down to 117k. Mentally feeling so relieved. The side symptoms on this med seemed to skip around for me. Thankfully, short term. I had extreme pain on both shins and lower arms and wrist area. Was really horrible at night when I tried to sleep. I literally laid on the floor and cried it was so bad. In looking back over the paperwork they gave me when starting this treatment, "muscular/skeletal" pain was mentioned as possible side affect. Boy, were they right about that. HOWEVER, after one week, it went away. Since then have had extreme swelling in one leg, heart palpitations (these the Dr. ordered EKG and eco cardiogram on my leg to check for blood clots. Both showed no signs. Now take a med to cut uric acid down so I don't get gout. Spleen was "huge", which caused pain in my stomach (squeezed together) and pain in my back from my kidney being pushed over. HOWEVER, these all seem to thankfully shrinking along with other lymphnodes and was short term. I love this sight. So many others are experiencing similar short term symptoms like me and it has mentally helped me get through this. HANG IN THERE and Good Luck.

usapajgy profile image
usapajgy in reply to duffymcgrif

Thank you so much for responding :0) I now have less pain in my right wrist. I was able to come out of my wrist immobilizer, YAY!

FarmerGirl00 profile image
FarmerGirl00

I also have transient pain similar to what you describe. I've been on ibrutinib for a year. The pain is intense for one or two days, then leaves and another part of the body has a pain. It's very weird. It is not arthritis.

You may also like...

Ibrutinib - Joint Pain

I have had CLL for 20 years and have been on Ibrutinib for 3 years. In recent months I have been...

Temperature dysregulation and joint pain

I found some posts from 7 years ago that addressed dealing with temperature dysregulation and how to

Joint pain

Dealing with muscle joint pain on Imbruvica

Imbruvica muscle joint pain I have been on imbruvica for six months and had an excellent response...

Ibrutinib bone , joint pain

joint pain when I first started ibrutinib over 6.5 years ago, which after a few months went away as...