Pin ball pain

[KAS8]

What a week!

Joint pain bouncing around my body like a pin ball machine.

Wednesday night left knee starts to hurt leaving me in pain all day yesterday and over night. Can't get up stairs normally and lifting my leg agony. This morning it's fine!

Last night right wrist and middle finger start to ache and now can't twist my wrist. Last weekend it was the left wrist.

What is going on?

[maggiesgrandmom]

Are you on Ibrutinib?

[KAS8 in reply to maggiesgrandmom]

Hi. I am on this and then the peripheral drugs - 2 months in now.

[maggiesgrandmom in reply to KAS8]

HI If you are on Ibrutinib, this is the cause. It lasts 4-5 days in one spot and then switches. Mine eventually lessened frequency after about 1year. I got wrist braces for both hands because immobilizing it really helped. One time I got it in my forearm, knee and ankle all at the same time. I had to go on steroids and they helped alot but you can't do that too often. I think it is really a tendon pain or inflammation but they call it arthralgia. If you can bear with it, it should lessen with time.

[KAS8 in reply to maggiesgrandmom]

Thank you. Last weekend I popped to my local A&E and they gave me a sling as my fingers were tingling hanging down. I will only be on this for another 4 - 7 months thankfully as preparing for a bone marrow transplant.

[maggiesgrandmom in reply to KAS8]

God bless you with this, you are brave and an inspiration to others.

[Bo80]

I am new to this site. I started imbruvica 3 weeks ago and have had the same thing going on. I could hardly turn the steering wheel in my car the other day because of wrist pain. Today left knee is hurting but I also have a bad pain in right groin area. Does this also cause tender lymph nodes. This drug really causes some pain.

[KAS8 in reply to Bo80]

I was advised to take co-codamol or ibuprofen ( although I cant use the later as a haemophilia carrier but it is meant to be better).

I have a high pain threshold but boy does it hurt!

Not had any tender lymph nodes - all of mine vanished on day 2.

Hope you feel better soon x

[Bo80 in reply to KAS8]

If on ibrutinib you can't take aspirin or any nsaids like ibuprofen.

[Cllcanada Top Poster CURE Hero in reply to Bo80]

That is your doctor's call.

[KAS8 in reply to Bo80]

Hi. Sadly as I am haemophilia carrier, I have to avoid both aspirin and ibuprofen

[Bo80]

Yes it is but a side effect of ibrutinib is bleeding.