CLL w/ 17p deletion & probiotics: I'm new here... - CLL Support

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CLL w/ 17p deletion & probiotics

amale profile image
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I'm new here, and thought I posted this earlier today but can't find it anywhere so I'll repeat it. Diagnosed SLL March 2015; diagnoses changed to CLL w/ p17 deletion Sept 2015; started treatment w/ Imbruvica end of Sept 2015. Essentially no side effects and immediate positive response. Now pretty much I have no signs I'm not absolutely healthy, EXCEPT in the past three or four months organic live yogurt (Nancy's & Mt. High) and organic kefir (Nancy's) eaten either a lot at once or 3-4 tablespoons a couple or three days in a row lead to minor digestive tract issues. Bloating, gas, a touch of diarhea. My homebrew beer and wine leads to same issue if I don't pasteurize it to kill the yeast.

Anybody got feedback?

thanks

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amale
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

Welcome

What bacteria cultures are in the yogurt, and some yeasts can stimulate B cell receptors... might want to pasteurize , the last thing you want is sepsis...from some rogue bacterium.

Some food for thought... from previous threads

healthunlocked.com/cllsuppo...

~chris

amale profile image
amale in reply to Cllcanada

Bifidobacterium lactis BB-12; L. acidophillus LA-5; L. casei; L. rhamnosus LB-3; L. bulgaricus; S. thermophilus in the yogurt.

Bifidobacterium lactis BB-12®, L. acidophilus LA-5®, L. casei, L. rhamnosus LB3 in the kefir.

.... and I do plan on pasteurizing the beer and wine from now on. Laid off of the Kombucha we were growing as well (forgot to mention it in the initial post).

And actually since you mention rogue bacteria we did let a batch of Kombucha go long and ... maybe infected by gut w/ the wrong critters?

thanks for the reply.

MsCLL profile image
MsCLLCLL CURE Hero

You can become lactose intolerant. Try some lactase tabs before eating dairy see if the problem stops.

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