CLL and B Cell lymphoma : My mom at 87 was... - CLL Support

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CLL and B Cell lymphoma

Teddy405 profile image
8 Replies

My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old. Are they associated in any way? My doctor says no.

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Teddy405 profile image
Teddy405
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Newdawn profile image
NewdawnAdministrator

Hi Teddy, I'm so sorry to hear about your mum and doubly sorry to hear you too have been diagnosed with CLL. There is believed to be a familial link and you may find the information contained in this previous post useful; - others may have more up to date research on the subject.

healthunlocked.com/cllsuppo...

Cute little dog :-)

Newdawn

Cllcanada profile image
CllcanadaTop Poster CURE Hero

Familial CLL is defined as a CLL case with at least one blood relative with CLL.

Mayo Study

ncbi.nlm.nih.gov/pmc/articl...

However, this can include relatives with other lymphomas new studies have found, like NHL, Burkett's, Folicular, Marginal Zone, Hairy Cell Waldenströms and so on.

I was diagnosed with CLL 19 years ago, my sister was diagnosed this fall. Familial CLL is very rare in siblings...

Perhaps you want to consult a doctor, who is more familiar with Familial CLL

~chris

ap64 profile image
ap64

there was a paper published for the American Hematology conference this year and it seems there are links. My Dad died of Nhl and I have CLL and my heme said they are linked. you might wish to look up the study about genetic links for firat degree relatives.

ap64 profile image
ap64

Sorry first degree relatives. my siblings and daughters have a strong chance of getting CLL in particular.

Bubnojay profile image
Bubnojay

Hi Teddy405

I have one brother with cll and one without, also, a cousin with NHL. I suspect it has come down through my mother's family.

Maybe not so rare. Concern as always it what we pass down to our children.

So despite your doctors comment I would have some suspicion that there could be a link.

How are you ?

Best wishes

Bubnjay1

Cllcanada profile image
CllcanadaTop Poster CURE Hero

The first degree relative study can be found at this link

ncbi.nlm.nih.gov/pmc/articl...

SueVG profile image
SueVG

I don't know the answer but you have one cute puppy! My best to you. I am going into treatment soon.

Meic13 profile image
Meic13

not enough is known about familial CLL but for now, live well.

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