I finished FCR about 8 months ago and it gave me a partial remission. My recent scans show that my nodes are growing. Blood counts fine for now. Dr expected a longer response. Will wait 6 more months and likely start ibrutinib. I'm nervous that won't work and then what? Also makes me worry about being on something the rest of my life. We used to think we had a 30 year plan with this disease and now I'm worried I have fewer years. I'm 54 . Thanks for any thoughts on what it's like on ibrutinib and what happens if this one fails.
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