PEOPLE HERE IN ADELAIDE ARE NOT GETTING THERE IBRUTINIB ON TRIAL AT THE MOMENT.

[piere1]

HIGH TOO EVEYONE OUT THERE CAN ANYBODY THAT LIVES IN AMERICA TELL ME WHATS HAPPENING WITH THE DRUG IBRUTINIB IM ON A TRIAL I LIVE IN ADELAIDE STH AUST FOR THE LAST TWO WEEKS BEEN GOING TOO PHARMACY AT QEH HOSPITALTOO TRY TOO GET THAT MEDICATION BUT WAS TOLD THERE IS SOMETHING GOING ON UP THERE AND US PATIENTS ON THE TRIAL ARE NOT GETTING THE DRUG AT THE MOMENT IF ANYBODY HAS THE SAME PROBLEM CAN YOU PLEASE LET ME NO GOD BLESS TOO EVERYONE AND WISH YOUS ALL GOOD HEALTH PIERE1.

[Bubnojay]

Hi Piere1

This does not sound good at Ll. A trial is no trial if the drugs are unavailable.

What does the specialist running the trial say about it.

Hoping things soon improve an that your drugs arrive.

Can't throw any light on what is happening I'm sorry

Best wishes

Bubnjay1

[Hidden]

I'm sorry to hear that you can't get the drug. I'm in the USA and have been on it for 3 months now. I'm doing very well, blood counts are normal to near normal from terrible in Jan., Feb. and March of this year when I was hospitalized to receive blood transfusions and platelets all those times, plus pneumonia. I hope you can soon receive the drug again. Best to you, and God Bless You too!!!

[splashsplash]

Maybe you tell your doctors there's a problem with being taken off Ibrutinib, I'm sure I read early on that the outlook for coming off the Ibrut. is not good so they need to get you back it on asap.

[Farrpottery]

We are in USA. My husband not in a trial. He has received his first 2 shipments from a specialty pharmacy out of state. He's on Medicare. First month we paid $2500, then $500 after initial cost put us into catastrophic stage. He's responded well so far. We would hate to not receive it now that it's the only one he's responding to.

God bless you to get yours quickly.

Farrpottery