Patient survey, support groups and living well with CLL

Friends,

It’s been a very busy year and this week I spent a few days away from my patients and my online and live support group efforts just walking, reading, and resting at a nearby state park on the beach. It was wonderful!

 As I prepare to speak at a symposium at the 2016 European Hematology Association Congress in Copenhagen in June, I am asking you to please consider completing our Reader Poll asktellq12016.questionpro.com on how we patients and caregivers make decisions about therapy. It takes less than 5 minutes to complete. Many thanks to the 190 folks who have already done so! 

We’ll present the aggregated results in a future issue of The CLL Tribune.

In our live support group efforts, we are forming 2 new patient and caregiver support meetings: Charlotte, NC and Tampa FL. 

•If you live in Charlotte, NC and are interested, please complete the online survey to indicate your preferences for days and times. [https://charlottegroup.questionpro.com/]

•If you live in Tampa, FL and are interested, please complete the online survey to indicate your preferences for days and times. [https://tampa.questionpro.com/] We look forward to getting started.

For those interested in getting a CLL support group going on the west side of the LA Basin, or in attending our Orange County group that meets at UCI, or the group that meets at City of Hope, please send us an email at support@CLLSociety.org and we will provide you with the necessary information.

Find out about other’s experiences with support groups in the Support area of the Living Well with CLL section of the website. [http://cllsociety.org/living-well-with-cll/support/] Teresa Altemeyer wrote a great article in the latest issue of The CLL Tribune about The Value of Support Groups – A Personal Perspective about how she was asked by her CLL specialist to facilitate a support group in Indianapolis, Indiana and the positive effect it had on her life. 

Check it out. [http://www.cllsociety.org/newsletter/quarter-1-2016-volume-2-issue-1/living-well-with-cll-quarter-1-2016-volume-2-issue-1/value-support-groups-personal-perspective/] 

In the meantime….

Stay strong.

We are all in this together.

Brian Koffman, MD

Volunteer Medical Director of the CLL Society

cllsociety.org

bkoffman.blogspot.com

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