To Report inappropriate Private Messages, posts or replies, just select 'Report' at the bottom right of the PM, post or reply.
Please note that reported posts and replies go to the community admins for review and appropriate action, but reported Private Messages go to HealthUnlocked. If HealthUnlocked agree that the reported PM is against HU guidelines, they may ban the sender from all 700+ HU communities.
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9 Replies
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Hi Neil or Good day
I'm surprised people would send inappropriate private messages this is a support site after all not a dating agency................Ok I will stop doing it
Jules
6ft 1in 16st ish dark hair dark eyes likes Cycling
This is very good to know and be reminded of. I was an administrator of a NHL cancer support page of about 4,500 people on Facebook, and there were many strange things going on. Besides offering support and watching the activities, my main concern was to scrutinize the profile of the new requests to approve. I put my 'heart and soul' into It, as I see that Aussie Neil does and I thank him greatly for his time and efforts! 😍
On behalf of my fellow administrator HAIRBEAR and the volunteers that keep us all safe (with Newdawn deserving particular mention), thanks SouthFloridaLady. Spammers know when to target communities, but thanks to that shared vigilance, our community is kept safe around the clock.
Sunday I had two new CLL friends to dinner with me and my husband. I told my heme-onc and was sternly told “to be careful, that crazy people get cancer too!” It gave me a giggle as they are lovely people, but I suppose he has a point.
Good reminder Neil. My observation would be...if you receive an unwelcome or unsavoury private message (pm/chat), please report it to HU using the dots at the bottom as described by Neil. This is a better strategy than engaging with the unwelcome ‘chatter’ because once a member has been in pm contact with you, they can continue to do so even if they are restricted from another community. Only a total HU ban takes the person off the HU site completely.
There’s always chancers and opportunists around and sadly some scammers will actively target what they view as more vulnerable members such as people with cancer.
Don’t get into private conversation with them, simply report to HU and if any distress is caused, alert one of the Administrators.
If you read something posted to our community which you believe is dangerously misleading, please report it.
From a study published online on July 22 in the Journal of the National Cancer Institute, "One in three of the most popular news and feature articles on social media about the treatment of the four leading cancers in the United States contains misinformation, and the majority of those have the potential to harm patients, according to a new analysis.
Of the 200 most popular articles (50 each for prostate, lung, breast, and colorectal cancer), about a third (32.5%, n = 65) contained misinformation.
Among these articles containing misinformation, 76.9% (50/65) contained harmful information.
“The Internet is a leading source of health misinformation,” the study authors wrote. This is “particularly true for social media, where false information spreads faster and more broadly than fact-checked information,” they said, citing other research.
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The ideas and claims in such articles can be very influential, Jennifer L. Lycette, MD, suggested in a recent blog post.
“After 18 years as a cancer doctor, it sadly doesn’t come as a surprise anymore when a patient declines treatment recommendations and instead opts for ‘alternative’ treatment,” she wrote.
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The misinformation was described as misleading (title not supported by text or statistics/data do not support conclusion, 28.8%), strength of the evidence mischaracterized (weak evidence portrayed as strong or vice versa, 27.7%) and unproven therapies (not studied or insufficient evidence, 26.7%).
Notably, the median number of engagements, such as likes on Twitter, for articles with misinformation was greater than that of factual articles (median, 2,300 vs. 1,600; P = .05)."
HealthUnlocked have just banned a new member from the entire site, after several admins reported them for following an excessive number of members and asking for contact details via Chat. Sadly, we currently need to maintain a heightened awareness of potential online threats, so please report any suspicious posts, replies or Chats/PMs per the processes outlined in the post above.
I'm bumping this post up into our newsfeed to remind people about the steps they can take if they have any concerns about suspicious posts, replies or Chats/PMs. See the post above for the details.
There's also some additional information about how members can help maintain our community safety in the following post:
I'm bumping this security reminder into Newsfeed, both to remind members to avail themselves of the site security features to report inappropriate content and per the web illustration, remind everyone that HealthUnlocked (HU) is part of the World Wide Web and unlocked posts can be discovered by internet searches. That's why HU strongly recommend you adopt a username that is not readily associated with you. I've noticed that we have quite a few members joining with their real names and this help page explains how to change this, if this applies to you: support.healthunlocked.com/...
Another very important reason to anonymise your username, is that if you opt to share the data you provide per the Data Sharing option in Settings: healthunlocked.com/settings you are further protecting your privacy. One of the reasons that HealthUnlocked remains free to use with minimal advertising, is that per the Data Sharing statement, "HealthUnlocked works with not-for-profit and commercial research partners to aid understanding and awareness in health. We share de-identified, completely anonymous information with these partners only where users consent." (My emphasis)
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Looking for Far Flung CLL Patients to Tell Their Story
A Reminder of the Symptoms of Shingles including the pre Rash phase. 
Ordered my Home PCR Test to access new treatments (Sotrovimab and Molnupiravir)
