I have been lurking for awhile.....: I am a new... - CLL Support

CLL Support

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I have been lurking for awhile.....

meemsdream profile image
14 Replies

I am a new member and have finally decided to post. I was diagnosed in April, 2014 after a fall and trip to the ER. I am stage 0 and watch and wait. I am happy to be part of this wonderful, supportive group. It helps so much to know we are not alone in this. Meem

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meemsdream profile image
meemsdream
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14 Replies
Newdawn profile image
NewdawnAdministrator

A warm welcome to you Meem and it's good to read your first post! It's not always easy to write that first one so well done and hope you'll feel able to join us often.

This community belongs to us all equally and individually we give it its collective strength so it's good to know it's helped you since your diagnosis.

Hope you're doing and feeling well with your CLL but please feel free to tell us more about yourself if and when you feel able.

Best Wishes,

Newdawn

Dx May 2012

shezsam profile image
shezsam

Hi Meems welcome I have only recently joined & it sooo good to find out other people are going through very similar situations to yourself! So much information on treatments & how people are coping & what are there side effects!! Hope you find this community as informative as I have!!!

9876 profile image
9876

welcome meem, I was diagnosed sept 2014 so fairly new myself, it took me two weeks of frantically reading everything on the internet before I found this site, which has been both comforting and reassuring that I wasn't alone in this roller coaster of a ride with cll, I love the fact that people can post their questions/ fears, ask for help and someone always answers, so a big welcome to a big friendly family that no one wanted to join Julie

mush56 profile image
mush56

hi Meem I'm a newbie to diagnosed January this year I find this web site such a help after reading awful things . I find wait and watch quite hard at the moment but every one says it gets better there is so much helpful info on here and if you don't know what some thing means just ask there is a world of knowledge on here mush1956

Ansll profile image
Ansll

Hi Meem I am also a newbie recently to this website although I was diagnosed in October 2008. I have been in denial during the WWW time until I got sick November 2014 and needed treatment. I had 2 cycles of FCR and became allergic to Rituxomab and severe neutropenia. I am now on Ibrutinib and doing really well and feel that I am close to having my normal life back! This website has been amazing and so informative... there is lots of hope and new developments. Keep yourself as fit and healthy as you can so your CLL diagnosis is maybe not such a burden.

DocM profile image
DocM

Welcome Meem from Canada...4 yrs with CLL here

sun_flower profile image
sun_flower

Hello, I am also a newbie dx in December 2014,its such a comfort to be on here amongst people who have been going through the same thing when I first found out I was devastated to say the least it gets better ,I am stage A and live in the UK I still have melt downs and have had a few rants on here but its good because we all understand and no question is stupid as I have found out,I hope like me we have a long W and W best wishes Maggie [Sunflower]x

alexmcg48 profile image
alexmcg48

Welcome, I was diagnosed in Oct 2014 & it comes as something a shock at first, although I'm Stage A as it is here in the UK with a low count according to the Dr.

This site is very good for support & info & here's hoping that it's a good while before it becomes anything that needs treatment.

meemsdream profile image
meemsdream

Thanks to all of you for the warm welcome. It is so appreciated and heartfelt. My wishes fro you are the same as yours are for me. Meem

Villager profile image
Villager

Welcome to the site. It is encouraging to know we can share our mutual concerns and successes here. Ibrutinib (Imbruvica) has provided wonderous treatment for my CLL.

More new target drugs on the way! Faith and Courage.

Cammie profile image
Cammie

Well done Meems!

Just remember we are all part of the cll club even if we didn't want to join!

Don't be alone with your cll join in the forum ask any questions you like many very experienced and expert patients on here and no question is silly because we have all asked them over the course of our journey,

Best wishes.

Geoff

PS cll club since 2000

meemsdream profile image
meemsdream

Thank you cammie and Villager.This is one journey I don't want to travel alone.I am finding that this is not an easy cancer to understand. Lots to learn. Meem

Elizabetha profile image
Elizabetha

Welcome Meem. This is such a supportive community, there is always someone who has the answer to posted questions. I have certainly been helped since my dx in Feb 2013. xxx

meemsdream profile image
meemsdream

Thank You Elizabeth, I am very glad to be here. Meem

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