Hello everyone. I am 42 and was diagnosed with CLL about 18 months ago. I have a very high wbc(120,000) but all of my other numbers and organ functions are totally fine. I have been lucky, a few bad colds but no serious infection my only symptoms that really affect me is extreme fatigue that hits me out of nowhere and glands in my neck that swell really large. I flew to LA to escape the NYC cold and shaved my winter beard off and got a skin irritation from shaving and it seems like that alone is a bad enough infection to make my lymph nodes respond. It's very frustrating but I'm grateful I know many others are suffering with much worse symptoms and complications.
Even with my numbers so high I am blessed that my doc (and kanji Rai who provided a second opinion at no cost) see no reason to "treat the numbers" and are in no rush to treat me yet. On days when the fatigue is beating me up and my glands make me feel like a freak show I wish there was treatment but my doc said unless it was preventing me from modeling jobs it's just too soon to start. Watch & wait is a double edged sword and I'm stil trying to wrap my head around it all but I still know I'm blessed to be in good health other than a touch of cancer. Working hard to eat well and get exercise and stay positive. Stress and aggravation really seem to affect me much more since I was diagnosed so I'm trying my hardest to avoid drama. Im Sending my prayers and well wishes to everyone dealing with this disease. anyone new who is struggling with the emotional strain just remember that the new treatments and medications are amazing. there is so much hope, keep fighting the good fight sunny days are ahead!!!!!