Treatment withdrawn, do we have any more options?
Apple321 in The Roy Castle Lung Cancer Foundation8 months ago
I’m writing this out of desperation and am probably clutching at straws. I would like some advice on whether there is any more I sho...
Medicheck Result - disappointed
lozzie84 in Thyroid UK8 months ago
Results back from medicheck, and everything is still borderline. I keep to a gluten free diet. I'm really at a lost, I'm always tired and I ...
Medicheck Results, please advise.
lucylocks in Thyroid UK6 months ago
just received my results from Medichecks.
I take 132mcg. levo. (125mcg. 5 days and 150mcg. 2 days)
Inflammation CRP 1.77 mg/L (Range: < 5)
Newly diagnosed with GCA does anyone have experience of temporal artery biopsy and the ultrasound option?
EdithWales in PMRGCAuk5 years agoPOPULAR
The literature says it's not dependent on the treatment which I have started Does anyone know where it can be done, will travel?
I have IBS-C & the diet thing confuses me. There is the fodmap, gaps & scd diets. What is working for you?
surfjen in IBS Network5 years ago
I am so confused with what to eat and not to eat for IBS-C. The doctor told me to follow the low fodmap diet so I am but feeling kind of wor...
Apollo123 in Advanced Prostate Cancer2 years ago
Hi All I am continually asking you all questions but I’m learning so much. I have seen a few members discuss Provenge as I treatment, I have...
Zytiga after chemo
bhr17 in Advanced Prostate Cancera year agoPOPULAR
Hello guys although I am not a frequent poster I visit this forum all but daily, but today I have a request, I just finished may chemo treat...
Any Cure for PSP
Anna_bella in PSP Association7 years ago
Is there any cure for PSP? My father was a professor and a very active person, but when he was diagnosed with PSP 4 years ago he changed alo...
New member — husband stage IV melanoma
Jericsson in Melanoma Caregivers2 years ago
Hi All - my 40 yr old husband, who had a melanoma removed from his chest a few years prior and had since checked out clean, was very suddenl...
BEE2019 in Thyroid UK6 months ago
So I wanted a full blood count done last year as I was feeling so weak and tired all the time I was concerned I may be anemic or have hypoth...
Megadoses of Vitamin D have no effect on prostate (or any other) cancer
Tall_Allen in Advanced Prostate Cancera year agoPOPULAR
A new randomized clinical trial finally puts to bed the question of whether taking large doses of Vitamin D has any benefit in the incidence...
imbruvica/gazyva or imbruvica/venclexta
Ivotedfornixon in CLL Support Association6 months agoPOPULAR
I am b-pll. i am p17 deletion and p53 mutated. I get treated like advanced CLL because there are so few b-pll patients not enough to get d...
My Cancer Is Going Strong & A Warning
Stegosaurus37 in Advanced Prostate Cancer2 months agoPOPULAR
First, the warning. A week ago, I was in the airport in Bucharest, Romania after finishing a Danube river cruise. I set off an alarm and ...
Treatment for mets to the liver - has anyone heard about this?
ken12491 in Advanced Prostate Cancer2 months agoPOPULAR
My Dr is going to use cabazitaxel and carboplatin to treat me.
3 rounds, 1 shot once every weeks - total 3 rounds - taking scans along the wa...
Spencer2016 in My Ovacome2 years ago
Does anybody know what criteria determines who is prescribed Avistin after first line treatment and who isn't? I'm in US so curious if this...
Stem cells (your own from fat).
Littlerody in Parkinson's Movement3 years agoPOPULAR
Ok here's the next brain teaser. Anyone do thinking about doing or have done stem cell treatment? I was told yesterday by a dr at one of t...
Hidden in British Lung Foundation4 years agoPOPULAR
Hi all am new to the site having just found it. Was diagnosed with mesothelioma last September and after having major operation in November ...
Interesting research into new treatment for MPNs
AndyT in MPN Voice4 years ago
Sounds like this could be promising - hope they get a trial organised soon!
Hope this link works OK...
Andypandy30 in Thyroid UK4 years ago
Feeling very low clutter kindly had a look at results . Feel nervous anxious and depressed also feel sick in morning not pregnant . Was advi...
Need some guidance
Jefner in Thyroid UK4 years ago
I have my first Endo appt next week and am arming myself with lots of info to take with me and also a list of the questions to ask.
Another miscarriage, tablet trial. Now a lump in my throat.........
Chasing-rainbows in Thyroid UK4 years ago
You may remember my previous posts, I'd had a miscarriage in May and found out I have thyroid antibodies but a tsh in range.
I'd been ...
Idelalisib is now CDF listed to treat relapsed/refractory CLL through the English Cancer Drugs Fund.
HAIRBEAR_UK in CLL Support Association5 years ago
Some more good news to start off the month.
Idelalisib for relapsed/refractory CLL is available through the Cancer Drugs Fund, it has been mo...
Is Ibrutinib \"The Cure\"?
Hidden in CLL Support Association6 years ago
Is it too soon to presume this because of a lack of data?
Research beginning to back us up.
Schenks in Thyroid UK5 years ago
I have posted below the abstract from a piece of research carried out by a non-pharmaceutical research team that has no vested interest othe...
What to do Next.
Aliwally in Cholesterol Support7 years ago
The present state of my cholesterol saga is that I have been taking pravastatin 20mg for about six weeks. I have been OK with it, just a cou...
Has anyone tried the injections Decapeptyl SR?
NoshB in Endometriosis UK7 years ago
I came off yasmin and ended up in hospital a month later and now I have to consider this, has anyone tried this and if so how bad are the si...
Moggie in Pernicious Anaemia Societya year ago
Got my intrinsic factor results yesterday and they are only sitting at 2 (0.0 - 24) so am now wondering where I go from here. M...
Length of hospital follow up
Stringbean53 in Oesophageal Patients Associationa year ago
Hi, is there any research as to the optimum time people should be followed up by the hospital, after treatment for oesophageal cancer? There...
Vitamins and minerals - Hashimotos
Tasha_B in Thyroid UK2 years ago
Hi I am 21 years old and have Hashimotos which is being treated. Symptoms I have are puffiness around ankles and under eyes, tiredness, eyes...
CLLSA Conference London 7 Nov 2017 slides available
Myrddin in CLL Support Association2 years ago
The slides from presentations given at the CLLSA conference in London at Bart's on the 7th of Nov 2017 are now available on the main site. cllsupport.org.uk/article/c......
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