A Week in a Life That I Wish Hadn't Happened
Hidden in Advanced Prostate Cancer3 years ago
After being denied Xtandi, and approved for Zytiga, I was looking forward to moving on. (difference $1000)
Last Wednesday, I had another bou...
25th May - is World Thyroid Day
shaws in Thyroid UK2 years ago
I wonder how those who make the Guidelines and who withdrew T3 in the UK to those who desperatey needed it to ...
Due to mention of 'Thyroid' - Professor Graham Hughes November 2014 Blog
MaryF in Thyroid UK4 years ago
Professor Graham Hughes November 2014 Blog:
November is true to itself – rain and dark skies. Fireworks lasting for weeks – Lucy...
Latest Advances In Connective Tissue Disorders: Antiphospholipid (Hughes) Syndrome - APS
APsnotFab in Sticky Blood-Hughes Syndrome Support5 years ago
This was posted up tonight on PubMed so for those that dont have access here is the APS section. If anyone wants any of the other sections o...
At a Dangerous Crossroads
Bogiedog in Advanced Prostate Cancer3 years agoPOPULAR
I'm in the throes of a serious metastatic illness: PSA 300+ and more than 20 mets. Have un through most of the usual treatments (lupron, d...
Aelgersma in SHARE Metastatic Breast Cancer 2 years agoPOPULAR
Curious...are any of you using subcutaneous mistletoe injections?
Soft tissue mets(liver, lung, etc.) In males age 45 - 55.
MiHombre in Advanced Prostate Cancer3 months ago
My guys most recent diagnosis indicated that the cancer has metastasized to his liver. 3 masses. His age is 52. His original diagnosis wa...
\"The most frustrating thing about being diagnosed with fatty liver or NASH is…\"
mrsmerlin in Living with Fatty Liver and NASH2 years agoPOPULAR
Being accused of being a liar by people who always associate cirrhosis with alcohol
You have to explained what NAFLD & NASH mean.
Then you get...
Ruxolitinib & GvHD
crapaud in MPN Voice3 years ago
I've been on higher doses of cortisone the last month or so to get over a chronic GvHD in my liver, after initial improvement things have re...
BlueGillfisherman in CLL Support Associationa year agoPOPULAR
I was diagnosed with CLL about two years ago. I really do not have any outward symptoms but I am usually always tired. Any suggestions
New here: Anyone have experience with Platinum Refractory Epithelial Ovarian IIIC cancer?
cari559 in SHARE Ovarian Cancer Support10 months ago
My mom was diagnosed with Epithelial Ovarian IIIC cancer in October 2017.
I assumed, naively that she would automatically go into remission...
New Canadian Member
Zee5 in Advanced Prostate Cancer2 months ago
Hello everyone! I'm 56 years old Canadian and living in Ottawa, Can. I am very active - skiing, playing hockey (goalie), water skiing, boat...
Greentea and tumeric extract dosing for CLL
Gransan4 in CLL Support Association5 months agoPOPULAR
Hi I was just diagnosed with stage 0 CLL last month.Of course I've been reading everything I can find about it.Green tea extract and tumeric...
Can anyone help with these results please?
mlig in Thyroid UK3 years ago
To cut a long story short, ive had loads of thyroid symptoms for ages and ages but the tft always comes back normal. A few months ago i foun...
What tests to do next?
Ninatz in Thyroid UK2 years ago
I am not diagnosed but something is just not right!
I had some blood tests done in December and was told to come back after 3 months or so...
Professor Graham Hughes August and September Blog 2015
MaryF in Sticky Blood-Hughes Syndrome Support3 years ago
BLOG : August and September 2015
Almost the end of September! My apologies to those who follow the BLOG for the late arrival of the August bl...
Is it all in my head?
deanna69 in Thyroid UK5 years ago
Can you please give me some more of your expert advice? Have just been back to see the endo who tells me that although I have Has...
A Review of the Clinical Consequences of Variation in Thyroid Function Within the Reference Range
helvella in Thyroid UK6 years ago
This is, potentially, a VERY important review paper. Even if you ignore the rest, read the conclusions.
J Clin Endocrinol Metab. 2013 Ju...
would I feel better if I was prescribed a low dose of thyroid medication.
ruthalem in Thyroid UK5 years ago
I have been feeling really rough for the past two or three years, tiredness, itchy skin, sleepless nights,broken nails, hair falling out to ...
painB4painafter in Fibromyalgia Action UK7 years ago
Hello, I'm new here and was wondering if anyone else with fibromyalgia has been diagnosed with secondary Raynaud's, if so do your fingers sw...
No dose increase
Vkb6 in Thyroid UKa year ago
New here why won't endo increase. I have abnormal results and he says my symptoms (constipation/fatigue/pins and needles/breathlessness/feel...
falconcottage1 in Understanding Clinical Trials2 years ago
hi. my name is sue and I am 60 years old and live in the uk. I have bronchiectasis and am constantly searching for treatments. A lady in the...
Adjuvant Radiation With ADT for Men With Lymph Node Metastases After Radical Prostatectomy
Balsam01 in Advanced Prostate Cancer22 days ago
Interesting OS rate for patients with \"adverse pathological features\". this is a FYI and the study has design issues.
Sinemet: factors affecting variability - gastric emptying
aspergerian in Parkinson's Movement8 months ago
Sage et al 1994 summarily present factors which affect availability of levodopa.
Roos et al 1993 compare C/L levels after empty-stomach inge...
Front Line Treatment in Canada?
alpek in CLL Support Association4 months ago
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib ...
I need help
joeltite1 in Pernicious Anaemia Society4 years ago
Got my reults on monday,my b12,vit d and folic acid are very low,B12 being 145,dr put me on tablets and wont put me on jabs unless intrinsic...
Anyone here with experience of pilocarpine (salagen)?
Barnclown in The Australian Sjögren's Syndrome Association4 years ago
Am 61, living in the UK, with infant onset systemic lupus (probably due mainly to inutero DES exposure). That earl...
I am so blessed
jamoza in Non Hodgkin's Lymphoma Friends2 years ago
I'm really proud of my response to a shock medical diagnosis in January 2012 when I was told that I had non-Hodgkins follicular lymphoma . ...
Advice Needed Urgently
Hidden in Advanced Prostate Cancera year ago
Gentlemen, I can't tell you how much your encouragement and advice have meant to me. This site has truly helped me get through the struggle...
What are the attributes of an effective treatment for PD?
fwes in Parkinson's Movement5 years ago
Is a regimen of daily ingestion of Coconut Oil an effective treatment for Parkinson’s disease? If effective means effective cure, then the a...
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