My daughter is 17 year’s old and as a baby she was diagnosed with Biliary atresia and had the Kasai producer at Birmingham Children’s Hosptial. After the surgery her liver funcation test were still high and therefore, she had a liver transplant at 2 years old.
At the moment my daughter is keeping well and she isn’t displaying any of the obsive signs and symptoms. Since last year February 2018 she has had numerous of blood which indicates her ALT, AST, ALP and GGT are high. Over the year she has had a ultrasound scan which suggested that her main artery is missing in the liver. The liver biopsy showed some vascular changes which was normal.
The liver doctors have decided to carry out further investigations. My daughter will be having an endoscopy and another liver biospy.
If there is anyone in the community that can advice me please send me a reply.
Thank you
Written by
Passion123456
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Hi passion, my name is lois and I am the children and families officer at the children's liver disease foundation, we offer families one to one support, provide educational resources/ leaflets etc that will give you reliable information on your grandchild's condition and also provide fun events for families so they can meet other families with a child with a liver condition. You can email me on cfofficer@childliverdisease.org or you can call 01212123839 to register with us. kind regards lois x
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