Choledochal Cyst - looking for others - Children's Liver ...

Children's Liver Disease Foundation

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Choledochal Cyst - looking for others

kcdou profile image
3 Replies

My 13-year-old was diagnosed with an asymptomatic choledochal cyst about a year ago, and will have surgery this April. She's understandably nervous and would love to communicate with another person who has undergone this surgery. Would love any connections we can find. Thanks!

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kcdou
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Shutt_01 profile image
Shutt_01

Hi my daughter had a choledochal cyst, she was diagnosed aged 2 in 2014 and had her surgery 2 months later in the November. Obviously she's not old enough to communicate herself with your daughter but if you'd like to ask me further questions please feel free. X

kcdou profile image
kcdou in reply to Shutt_01

Thanks! I've been given so much information from doctors and surgeons, but not a lot from patients/parents familiar with the procedure. I think I would ask - looking back, what do you wish you had known before the procedure?

Caitlin-CLDF profile image
Caitlin-CLDFPartnerCLDF

Hi kcdou , if you're in the UK your daughter can join our social media site Hive, which is just for young people with a liver condition - cldfhive.co.uk/

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