Welcome: If you’ve just arrived as a... - Understanding Cli...

Understanding Clinical Trials

1,320 members329 posts

Welcome

matt profile image
matt
1 Reply

If you’ve just arrived as a Participating in a Clinical Trial group member, this is where it all begins. It’s about reaching other people and pooling together a mixture of information, support and experience to empower and change the lives of others. Most people with similar health interests also have something unique in their own experience that can help others. Everything here is designed to help you unlock the power of the crowd.

Back in 2007 I was a resident surgeon in a leading UK hospital. Our government was launching a series of changes to the way specialist doctors like myself were being accredited, and 99% of us felt it was a damaging step for the nation’s health, harmful both to us and future generations of patients we’d be treating. Big health institutions weren’t interested, so myself and a handful of doctors got together online. We started bringing more and more doctors into the group through the web. At first many thought we were crazy but quickly we became grassroots advocates for a generation of UK doctors, and in a couple of months we had a movement of 15,000 that provided support, inspiration and information to each other. We organized the biggest medical rally in UK history, an ongoing media campaign and, eventually, a high profile legal action. We got the health reforms radically changed for the better.

I learnt a lot about the immense power of togetherness, so when I joined forces with Jorge (our CEO) to dream up HealthUnlocked one of the main goals we shared was to make creating an online movement easier for inspired health advocates like you. From my own experience the importance of the group pioneers is the key.

That’s why you being here and reading this today is an important moment. In my experience if you can summon up the persistence to connect with other pioneers, create some activity, and trigger the spirit of a community, there’s no end to what you will go on to achieve together.

This 3 minute TED lecture speaks volumes about it:

youtu.be/RXMnDG3QzxE

Written by
matt profile image
matt
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Magnus1964 profile image
Magnus1964

I am currently in a drug trial using xtandi and a mystery drug from Eli Lilly. I have been in this trail since April of 2016, so far so good. My PSA went from 130 to 25 to 22 to 6.