Ibrutinib / Venetoclax
BCTexas8 months agoPOPULAR
I thought if my numbers were ok and my symptoms weren't that bad that I would be on watch & wait longer....
CLL and Diet/supplements
SuzeJc8 months agoPOPULAR
My consultant informed me there is no firm evidence that diet can impact on CLL, however I have read that some individuals have been sure cha...
Help! Slow down the progression of CLL
Jemisavs58 months agoPOPULAR
My numbers have increased and the doctors say this is an indicator of progression in my CLL....
Too long of a post?
greygirl6 months agoPOPULAR
A famous doc who has CLL wrote a post about how smart it is to take your shoes off before entering house....
Newly diagnosed Cll B cell
StacyA6 months agoPOPULAR
Hi I was recently diagnosed with Cll B cell I have deletion of the Tp53 and 17p13.1 I am very confused very uncertain and all the info I'm re...
Ibrutinib as frontline??
bendintheroad12 months agoPOPULAR
Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? I've read posts on here wh...
Green tea extract? And vitamins?
Elizabekro69 months agoPOPULAR
Hi I'm 44 recently diagnosed with CLL, this is my first time posting....
CLL / P17 with Mutation
evetom7 months agoPOPULAR
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation....
UPDATE ON: Help! 31yr old newly diagnosed CLL.
Jade263a month ago
We spent 2+hrs explaining everything anyone ever wanted to know about CLL. Anyway, our father ( mine and my brothers ) apparently has CLL, an...
Richter Transformation treatments
Christian0578 months agoPOPULAR
I was diagnosed with Richter Transformation of CLL last April and was fearing the worst....
Would like CLL Specialist in BC - Private pay for IGHV?
Jiggs177 months agoPOPULAR
Hi diagnosed Jan 2015 on w and w, numbers moving up but didn't double in the year I'm wondering if anyone knows a CLL Specialist in British C...
CLL in stage zero.
noeagaman3 months ago
I was diagnosed with CLL two years ago and remain in stage zero....
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
NMMP6 months ago
2010 and we can't seem to hit that remission " sweet spot " that we read about in the stats or trials - is it us or just the reality of how e...
dfeld7 months agoPOPULAR
My wife was recently diagnosed in Jan 2017 with CLL from routine blood test for a physical....
ARE there doctor written CLL articles that stress the importance of USING REBOUNDERS to get the lymph moving?
jettyguy15 months ago
Can someone explain to me the tie-in between why rebounding is helpful to CLL patients? I can see that jogging has helped me immensely,but ar...
Venetaclax for non 17p deletion SLL
ReneeSusan3 months ago
Does anyone know if Venetoclax is approved for relapsed, previously treated SLL unmutated IGHV? Can't do Next Gen Rituxan drugs and I don't w...
Combination therapy for our CLL
bkoffman7 months ago
Hi, This week, I am sharing a video of Dr. Jennifer Brown from Dana Farber Cancer Institute where she discusses the possible next steps in co...
CLL/SLL, what to expect?
aptucxet7 months ago
I am 82 and on w/w for 4 years. No symptoms that I am aware of....
chlorambucil + obinutuzumba
eoravilloa month ago
I am 68 and untreated and been on W&W for 5 years. I have an enlarged lymph node on neck and one smaller to side of face....
Just diagnosed on Dec. 9th 2016. Wait & watch stage.
pesho9 months agoPOPULAR
I am a 49 yo from Ottawa, Canada that was just diagnosed with CLL stage 0. After reading up almost half of the internet in the past twenty od...
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