Lymph node biopsy to rule out Richtors
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS....
MD Anderson/Mayo or Peter MacCallum for treatment?
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm....
Exposure to Glyphosate (Round Up)? Any one believe this could be a factor in developing Non Hodgkins Lymphoma?
Just curious if anyone has had exposure to this product, got CLL and their thoughts on this product as related to CLL. So I'm curious if anyo...
I have complained about one symptom since acquiring cll and that is fatigue....
MRD-U Baby your one of four in two million!
In my case just 4 of them had a signal that was suspicious of CLL. And so what this test can say in my case is that less than 1 in 100,000 of...
I have TP53
Presently I am on Ibrutinib ( have been for 10 months and doing relatively well )....
Are you 11qATM CLL too ? what treatment works best? Please reply ASAP
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozy...
2nd Update on Possible Richters Transformation
The upside is I don’t have RT, but I did pick up some more high risk markers in addition to : 11q and unmutated. I learned in July the result...
Worried about financial ruin...
As soon as I googled and realized how complicated the management of CLL was, I made an appointment at Moffitt Cancer Center which seems to be...
CLL is gone!!!!
Once a CLL patient always a CLL patient and I know there might be a chance of relapsing at some point but I'll stay positive and will beat th...
Bone marrow test ?
Hi everybody My wife was diagnosed with CLL five years ago , she’s 13q delation mutated and started Imbruvica in January with excellent resul...
ibrutinib, opposite effect.
Our doctor is Dr. James Johnston in Winnipeg, Canada, and he is a CLL specialists and he said he hadn't seen this reaction and was going to t...
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session....
Newly diagnosed too, stage 0
I am 53, I found out due to my yearly checkups, my WBC are in 12000 which I understand is nothing yet. I did the FISH and I have the 13q dele...
Factors Identified for Risk of Second Cancer in CLL Following BTK Inhibition
It was thought that the lack of DNA damage with Ibrutinib and Acalabrutinib would prevent this risk. Unfortunately, it may be that all CLL tr...
Why did I get CLL? Clearing up confusion between correlation and causation
Following our CLL diagnosis, one of our first questions is why me?...
CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage?...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
Hi everyone I've recently been diagnosed with cll and tomorrow.....
Nulasta and a large Spleen
My husband came home from the Hospital last night. He had two treatments of Gayzena ( sp ) Now he is has another due on Friday....
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