When facial paralysis affects the way you look

If there are any members of the site with facial paralysis, this guide may be helpful to you. The guide looks at getting information about your condition, monitoring your condition, treatment and self-management, and 'coping' in the long term,

changingfaces.org.uk/downlo...

Please use the comment box below to let us know what you think of the guide, and if you can give any advice or tips to any of our members which are not in the guide please do write them down below.

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  • I do not have facial paralysis as descibed but I do have many of the symptoms due to perioral burns such as small mouth,pain,tingling,difficulty eating,inability to smile etc. Informatiom about meeting other people and using Reach Out as a technique is very useful. I would,however, like to hear from those with the conditions descibed Some short casestudies could have been helpful. The quote from the boyfriend said more than 3 paragraphs of factual text!

    I would also have found a physiotherapy contribution useful with some exercises especially as I could not access the reference suggested.

    I have found the waiting for things to improve the most difficult especially as on the whole things have got worse and there is little professional support. How have others managed?

  • I found the guide useful but it could include more information about other types of facial paralysis such as Herpes Zoster. I was recently diagnosed with Herpes Zoster Oticus which tends to be worse than Bell's Palsy. Nerve damage curve and recovery curve would also be helpful. Any specialist information, foundation supporting research and support groups would also be useful. Case studies following individuals from the beginning t. The paralysis just started for me and though many doctors have warned me that my condition will take 6 months or longer for recovery, it is extremely difficult to wake up every morning with no or minimal change.

  • Hi guys,

    Thank you for your constructive comments - I will pass these on to our adult practioners who manage the help guides.

    Changing Faces.

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