I was sent a link to this website/community through changing faces. I am 17 years old, living in England. I was diagnosed with Non-syndromic Complex multi-sutural Craniosynostosis as a baby at Great Ormond Street Hospital and been under their care for most of my life. I am looking to connect with people in a similar boat compared to me as I would like to get in touch with people. Hope you are well and having a lovely day =)
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