Carvanomas.

[Marleniroth]

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. After so many evaluations. Exam.

[CAUKcommunity16 Partner]

Hi Marleniroth. I am sorry to hear of your diagnosis. Do you know where in the brain/spine your cavernoma is? It is quite common for cavernomas in delicate/difficult locations to be left untreated under what they call the 'watch and wait' approach. Did you have a bleed? If so, there is every chance that this will be your only one - a lot of the time doctors prefer to monitor the patient over time rather that operate if the cavernoma is in a tricky location.

Are you taking any medication? What symptoms are you experiencing?

Please know that you are not alone and we are here to help. You will find more information on our website if you are interested, and you can become a member for free if you would like.

Sending lots of love and strength

[Marleniroth in reply to CAUKcommunity16]

Hi friend i have 20 carvanomas.I have a large one in the left and the other one on the right and the others in the cental part of the skull and I take keppa 3,000 ml of medicine have given me three epelectic attacks that left me unconscious. It makes me very sleepy in my work. So sleepy my face gets noun.